tag:blogger.com,1999:blog-70167190734708007792024-03-17T01:13:48.593-07:00Parents for Medical Cannabis - KentuckyAutism, Epilepsy, & BeyondParents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-7016719073470800779.post-76399975763103340472014-07-04T04:01:00.000-07:002014-07-18T02:21:22.799-07:00Medical Cannabis Refugees Invite Obama to A-Day-In-The-Life<br />
<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/obamafamily.jpg.html" target="_blank"><img alt=" photo obamafamily.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/obamafamily.jpg" /></a><br />
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Last month the Obama Administration announced that the President will be doing a series of <a href="http://www.latimes.com/nation/la-na-obama-day-20140627-story.html">"A-Day-In-The-Life"</a> visits with average Americans throughout the country. <br />
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The <a href="https://www.facebook.com/pages/SE-Coalition-for-Medical-Cannabis-Research/1417747628480881">Parents Coalition to Reschedule Medical Cannabis</a> has begun a letter writing campaign to The President on behalf of families seeking medical cannabis treatments for sick children or adults. Those who have had to move from home states for treatment elsewhere or those living in prohibitive states and unable to move are invited to submit their stories to The Coalition in WORD format at <a href="mailto:nationalPCRMC@gmail.com">nationalPCRMC@gmail.com</a>. The letters will be bundled and submitted to the White House after July 7th.<br />
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The campaign is being coordinated by Kristi Baggarly, a lead Coalition organizer from Georgia.<br />
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<blockquote class="tr_bq">
"I found out about President Obama's tour through the White House email updates", said Baggarly. "This email caught my eye for some reason and, while I think the campaign is driven by his desire to learn more about the economic hardships of Americans, I thought that he should also hear about the struggle of families who are literally fighting for their children's lives. This fight often leads to the financial distress that many Americans experience, and the economic downturn certainly has not helped. I realize that this may not be something that is on his radar, but I believe in the power of our team and that we can help bring some awareness to our national leaders. We all have done what many considered the impossible at the state level, and there is no doubt in my mind that working together, we can bring this kind of change across the country!"</blockquote>
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Annie Galloway moved her family from Vermont to Colorado so her epileptic daughter could obtain Charlotte's Web, a non-psychoactive cannabis/hemp oil high in cannabidiol, to treat her seizures. From Galloway's letter:<br />
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"I chose to leave our family, friends, my work and her Care Team to see if this treatment would offer her a better life. <span style="mso-spacerun: yes;"> </span>She has suffered with Intractable Epilepsy for almost 5 years. Since being here we have met a wonderful group of families who are like ours, we have joined together to support one another as we try this new life changing therapy. I hope that you will visit our home so that you can learn more about what it is like to live with such a serious medical condition and what it is like to be trying to give my daughter a better chance at life with the controversial treatment of Cannabis.".</blockquote>
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<span style="font-family: "Times New Roman","serif"; font-size: 12pt; mso-fareast-font-family: "Times New Roman";">Thousands of American families live this reality right now. If yours is one of them The President needs to hear your story. To find out more visit The Coalition's event page from this effort <a href="https://www.facebook.com/events/337711736381748/">here</a>.</span></div>
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<span style="font-family: "Times New Roman","serif"; font-size: 12pt; mso-fareast-font-family: "Times New Roman";"><strong>Further Reading:</strong></span></div>
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<span style="font-family: "Times New Roman","serif"; font-size: 12pt; mso-fareast-font-family: "Times New Roman";"><a href="http://www.latimes.com/nation/la-na-obama-day-20140627-story.html">President Mingles in Minnesota for A Day in the Life visit - The Los Angeles Times</a></span></div>
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<span style="font-family: "Times New Roman","serif"; font-size: 12pt; mso-fareast-font-family: "Times New Roman";"><strong>Editor's Note:</strong> </span></div>
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<span style="font-family: "Times New Roman","serif"; font-size: 12pt; mso-fareast-font-family: "Times New Roman";">The Parents Coalition to Reschedule Medical Cannabis recently expanded its presence from being a southern regional group to a collection of national advocates. Their Facebook page is still listed under their former name, <a href="https://www.facebook.com/pages/SE-Coalition-for-Medical-Cannabis-Research/1417747628480881">Southeast Coalition for Medical Cannabis Research</a>, but that will soon change.</span></div>
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Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com37tag:blogger.com,1999:blog-7016719073470800779.post-72747687160316706582014-06-28T17:13:00.000-07:002014-07-18T02:02:07.106-07:00Parents Barrage Attorney General Holder with Postcards Advocating Cannabis Rescheduling<br />
<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/Eric_Holder_official_portrait.jpg.html" target="_blank"><img alt=" photo Eric_Holder_official_portrait.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/Eric_Holder_official_portrait.jpg" height="320" width="255" /></a><br />
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A national postcard mail in campaign to Attorney General Eric Holder will go live the morning of July 1st 2014. The timing is specific so the cards arrive on the same date in a flurry of pleas for the rescheduling of medical cannabis.<br />
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<a href="https://www.facebook.com/events/254026754799985/">Post Cards for a Cause</a> is inspired and coordinated by Pennsylvania parent medical cannabis activist, Dana Nadzam Ulrich. <br />
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<strong>"Postcards are the easiest and cheapest way to get our message to those who can make this change.", said Ulrich. "That being said, postcards will also allow your messages to be seen all along their route to their destinations. Many hands and eyes will fall upon your cards as they travel from all corners of the country."</strong></blockquote>
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And spread the message they will. Post cards depict sick children sharing the message of their unnecessary suffering. Many parents have ordered hundreds, even thousands to pass out to friends and relatives for the mass mailing. <br />
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Even if it is too late for you to order yours from Vista Print you could still print a picture of yourself or your child, or a ribbon from your condition on card stock and pass them out to family and friends to be mailed on the first. <br />
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Here is a small sample of some of the cards going out Tuesday. To see a more visit <a href="https://www.facebook.com/events/254026754799985/">Post Cards for a Cause.</a><br />
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<strong><span style="font-size: large;">In Memory of Sabina Rose.</span></strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1-2.jpg.html" target="_blank"><img alt=" photo postcard1-2.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1-2.jpg" height="259" width="400" /></a><br />
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<strong><span style="font-size: large;">Who could deny this epileptic baby his right to this treatment?</span></strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcards1.jpg.html" target="_blank"><img alt=" photo postcards1.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcards1.jpg" height="300" width="400" /></a><br />
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<strong><span style="font-size: large;">Or this epileptic angel?</span></strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1.jpg.html" target="_blank"><img alt=" photo postcard1.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1.jpg" height="640" width="412" /></a><br />
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<strong><span style="font-size: large;">Or this darling?</span></strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1-1.jpg.html" target="_blank"><img alt=" photo postcard1-1.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1-1.jpg" height="400" width="300" /></a><br />
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<strong><span style="font-size: large;">Who would deny this beautiful young woman her best chance to live?</span></strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1-3.jpg.html" target="_blank"><img alt=" photo postcard1-3.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1-3.jpg" /></a><br />
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<strong><span style="font-size: large;">Or this sweet girl?</span></strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1-4.jpg.html" target="_blank"><img alt=" photo postcard1-4.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1-4.jpg" height="225" width="400" /></a><br />
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<strong><span style="font-size: large;">Who would deny this boy a world less assaulting to his senses?</span></strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1-5.jpg.html" target="_blank"><span style="font-size: large;"></span><strong><span style="font-size: large;"><img alt=" photo postcard1-5.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1-5.jpg" height="300" width="400" /></span></strong></a><br />
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<span style="font-size: large;"><strong>Who wouldn't do everything possible to protect her access?</strong></span><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1-6.jpg.html" target="_blank"><img alt=" photo postcard1-6.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1-6.jpg" /></a><br />
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<span style="font-size: large;"><strong>Or do everything in his power to save these children?</strong></span><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1-7.jpg.html" target="_blank"><img alt=" photo postcard1-7.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1-7.jpg" height="297" width="400" /></a><br />
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<span style="font-size: large;"><strong>Who wouldn't bend over backwards and sideways</strong></span><br />
<span style="font-size: large;"><strong>to give him a better life?</strong></span><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1-8.jpg.html" target="_blank"><img alt=" photo postcard1-8.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1-8.jpg" /></a><br />
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<strong><span style="font-size: large;"></span></strong><br />
<strong><span style="font-size: large;"></span></strong><br />
<strong><span style="font-size: large;">She deserves better.</span></strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/52715f9e-9a67-4322-9168-ead0b977c930.jpg.html" target="_blank"><img alt=" photo 52715f9e-9a67-4322-9168-ead0b977c930.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/52715f9e-9a67-4322-9168-ead0b977c930.jpg" height="300" width="400" /></a><br />
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<strong><span style="font-size: large;">And so does she.</span></strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1-10.jpg.html" target="_blank"><img alt=" photo postcard1-10.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1-10.jpg" height="300" width="400" /></a><br />
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<span style="font-size: large;"><strong>What is their quality of life?</strong></span><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/postcard1-11.jpg.html" target="_blank"><img alt=" photo postcard1-11.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/postcard1-11.jpg" /></a><br />
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<strong><span style="font-size: large;">Or his?</span></strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/alexholder.jpg.html" target="_blank"><img alt=" photo alexholder.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/alexholder.jpg" height="400" width="331" /></a><br />
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<span style="font-size: large;"><strong><em>What would you do Mr. Holder, Mrs. Burwell, President Obama if these were your children?</em></strong></span><br />
<br />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com18tag:blogger.com,1999:blog-7016719073470800779.post-66180198664995311442014-06-27T02:43:00.004-07:002014-07-17T03:29:22.592-07:00Special Needs Parents Group Urges HHS Secretary Burwell to Reschedule Cannabis<br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/sylviaburwellpic.jpg.html" target="_blank"><img alt=" photo sylviaburwellpic.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/sylviaburwellpic.jpg" /></a><br />
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<a href="https://www.facebook.com/pages/SE-Coalition-for-Medical-Cannabis-Research/1417747628480881">Parents Coalition to Reschedule Medical Cannabis</a> has begun a letter writing campaign urging the new Health and Human Services Secretary, Sylvia Burwell, to reschedule medical cannabis. Mrs. Burwell was sworn into office on June 9th to replace outgoing Secretary Kathleen Sebelius.<br />
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The effort is being spearheaded by Jill Swing of South Carolina, a lead Coalition organizer. She decided to take this on after reading the federal Controlled Substances Act and learning that the HHS Secretary has the power to recommend rescheduling any drug on the list.<br />
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<blockquote class="tr_bq">
<strong><em>"Sub-chapter I-Control and Enforcement, Part B Section 811:.Rules of the Attorney General under this subsection may be initiated by the Attorney General (1) on his own motion, (2) at the request of the Health and Human Services Secretary or (3) by petition of any interested party."</em> </strong></blockquote>
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"Up until that point all the focus was on the Attorney General concerning rescheduling, but now I learned there was another person who could make that happen.", said Swing. "What I hope to accomplish is that by sharing our stories, we will reach her on a personal level (she has two young children) and encourage her to request that Attorney General Eric Holder reschedule. Also, under her Agency there is something called the 'Guidance to Procedures for the Provision of Marijuana for Medical Research' which is an additional review for any non NIH-funded protocols. Marijuana in the ONLY Schedule I substance that has to undergo such scrutiny in order to allow research to be done. So, in addition to asking her to reschedule, we will be asking her do away with this policy, to make marijuana more accessible for research."<br />
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The Parents Coalition to Reschedule Medical Cannabis invites anyone who wants to write a letter to join this campaign. Interested persons can join the Facebook event <a href="https://www.facebook.com/events/1429553027328842/?ref_newsfeed_story_type=regular">Letter to Secretary of HHS, Sylvia Matthews Burwell</a>. The page includes the Secretary's address for the header and more details about the campaign. Send a one page letter in WORD format detailing yours or your child's struggle and how medical cannabis has or might help to Jill by July 6th at <a href="mailto:hope4kidssc@gmail.com">hope4kidssc@gmail.com</a>. Pictures welcome. All letters will be bundled together and sent on July 7th.<br />
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The Coalition also invites state legislators who have passed medical cannabis laws to write letters detailing the barriers Schedule I status for cannabis creates to patient access in their states.<br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/ireportjillsdaughter.jpg.html" target="_blank"><img alt=" photo ireportjillsdaughter.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/ireportjillsdaughter.jpg" height="320" width="240" /></a>Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com23tag:blogger.com,1999:blog-7016719073470800779.post-58886262355055937882014-04-03T07:49:00.000-07:002014-06-14T04:08:48.012-07:00Cannabidiol (CBD) & Breast Cancer Links <div class="irc_mutc" style="display: none;">
<a class="irc_mutl" data-ved="0CAUQjRw" href="http://www.google.com/url?sa=i&rct=j&q=&esrc=s&source=images&cd=&cad=rja&uact=8&docid=dfBVpweeZEFCiM&tbnid=_PMvWZaBy26PRM:&ved=0CAUQjRw&url=http%3A%2F%2Fnorml-uk.org%2F2013%2F06%2Fdutch-thc-strength-paper%2F&ei=kJU6U-W3GKmksQSwv4CgCg&bvm=bv.63934634,d.b2I&psig=AFQjCNFoACvNK-mQ_ij7jvLv1qimn9KdOg&ust=1396434650652582"><img class="irc_mut" height="393" src="https://encrypted-tbn3.gstatic.com/images?q=tbn:ANd9GcTlqCcj5JZ5NL7ZRvR6kEGkFPBhicHcH-71Vq2QIHdnJXe01hybhw" style="margin-top: 0px;" width="393" /></a></div>
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<a class="irc_mutl" data-ved="0CAUQjRw" href="http://www.google.com/url?sa=i&rct=j&q=&esrc=s&source=images&cd=&cad=rja&uact=8&docid=dfBVpweeZEFCiM&tbnid=_PMvWZaBy26PRM:&ved=0CAUQjRw&url=http%3A%2F%2Fnorml-uk.org%2F2013%2F06%2Fdutch-thc-strength-paper%2F&ei=kJU6U-W3GKmksQSwv4CgCg&bvm=bv.63934634,d.b2I&psig=AFQjCNFoACvNK-mQ_ij7jvLv1qimn9KdOg&ust=1396434650652582"><img class="irc_mut" height="393" src="https://encrypted-tbn3.gstatic.com/images?q=tbn:ANd9GcTlqCcj5JZ5NL7ZRvR6kEGkFPBhicHcH-71Vq2QIHdnJXe01hybhw" style="margin-top: 0px;" width="393" /></a></div>
<div class="irc_mutc" style="display: none;">
<a class="irc_mutl" data-ved="0CAUQjRw" href="http://www.google.com/url?sa=i&rct=j&q=&esrc=s&source=images&cd=&cad=rja&uact=8&docid=dfBVpweeZEFCiM&tbnid=_PMvWZaBy26PRM:&ved=0CAUQjRw&url=http%3A%2F%2Fnorml-uk.org%2F2013%2F06%2Fdutch-thc-strength-paper%2F&ei=kJU6U-W3GKmksQSwv4CgCg&bvm=bv.63934634,d.b2I&psig=AFQjCNFoACvNK-mQ_ij7jvLv1qimn9KdOg&ust=1396434650652582"><img class="irc_mut" height="393" src="https://encrypted-tbn3.gstatic.com/images?q=tbn:ANd9GcTlqCcj5JZ5NL7ZRvR6kEGkFPBhicHcH-71Vq2QIHdnJXe01hybhw" style="margin-top: 0px;" width="393" /></a></div>
<a data-ved="0CAUQjRw" href="http://www.google.com/url?sa=i&rct=j&q=&esrc=s&source=images&cd=&cad=rja&uact=8&docid=JV1YcICr_l0C2M&tbnid=vq2M-ua9MRvk8M:&ved=0CAUQjRw&url=http%3A%2F%2Fwww.mycbdinfusions.com%2Fabout%2Fabout-cbd-2%2F&ei=3pU6U6rhE4TlsATf4IGQDQ&bvm=bv.63934634,d.b2I&psig=AFQjCNFoACvNK-mQ_ij7jvLv1qimn9KdOg&ust=1396434650652582" id="irc_mil" style="border-image: none; border: 0px currentColor;"><img class="irc_mut" src="http://www.mycbdinfusions.com/wp-content/uploads/2014/02/arizona-medical-marijuana-testing-cbd.jpg" height="203" id="irc_mi" style="margin-top: 95px;" width="413" /></a><br />
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The local media focuses on epilepsy, since that community lead the charge for cannabidiol in Kentucky, but the new law actually does not limit by condition. It merely declassifies cannabidiol from the definition of marijuana and allows doctors affiliated with The University of Kentucky and The University of Louisville to prescribe high CBD products or use them in clinical trials. Even though no product is available yet in Kentucky, it can't hurt to start those conversations with doctors now so that ground is already covered by the time CBD Oil arrives.<br />
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Since I am currently being treated for breast cancer, I want to bring all the animal model research on cannabidiol and that condition to my doctor at James Graham Brown Cancer Center. I needed a place to store those links, so I decided to create a post on this blog for them, even though this is an autism and epilepsy website. Later I will add links for other forms of cancer so patients interested in bringing research to their own doctors can print them. At a later date I may make a separate website for CBD and cancer, but right now I'm busy with autism and epilepsy.<br />
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<strong><span style="font-size: large;">Cannabidiol and Breast Cancer Links</span></strong><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/20859676">Pathways mediating the effects of cannabidiol on the reduction of breast cancer cell proliferation, invasion, and metastasis</a><br />
<a href="http://www.ncbi.nlm.nih.gov/pubmed/20859676">Breast Cancer Res Treat. 2012 May;133(1):401-4</a>.<br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/18025276">Cannabidiol as a novel inhibitor of Id-1 gene expression in aggressive breast cancer cells.Mol Cancer Ther. 2007 Nov;6(11):2921-7.</a> <br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/21915267">PLoS One. 2011;6(9):e23901. d</a> oi: 10.1371/journal.pone.0023901. Epub 2011 Sep 7.<br />
<a href="http://www.ncbi.nlm.nih.gov/pubmed/21915267">Crosstalk between chemokine receptor CXCR4 and cannabinoid receptor CB2 in modulating breast cancer growth and invasion.</a><br />
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Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com57tag:blogger.com,1999:blog-7016719073470800779.post-39842449457736727892014-03-23T05:29:00.001-07:002014-03-23T05:29:50.230-07:00Kentucky: SB 124, Clara's Law, House Vote This Week<img class="rg_i" data-sz="f" name="rADg0iG5DudijM:" 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" 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<br /><br />
<br /><br />
<strong>The Vote</strong><br />
<br /><br />
The vote for SB 124, now amended to Clara's Law (The CBD or Cannabidiol Bill), will likely happen this Wednesday, March 26, 2014. The full House usually meets between 2:00 and 4:00 p.m. Right now this is word of mouth, as Wednesday's schedule has not been posted, but I will be tracking the LRC page closely and will inform you of any changes or updates. I just wanted to give a head's up so those hoping to attend have some time to plan. <br />
<br /><br />
<strong>How To Help</strong><br />
<br /><br />
Please contact your Representative at 1-800-372-7181 and ask him or her to vote for SB 124. Even if you have called before it is important to do so again since this is a new vote. <br />
<br /><br />
Yours in This,<br />
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SuzanneParents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com10tag:blogger.com,1999:blog-7016719073470800779.post-58185847351180795832014-03-19T02:48:00.002-07:002014-03-19T02:48:36.681-07:00Kentucky: CBD Bill Goes to House Judiciary Committee Vote Today/How To Help <img class="rg_i" data-sz="f" name="Cv7jrPfpHMYDfM:" 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" 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<strong>CBD Bill Up For Committee Vote</strong><br />
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Today, March 19, 2014 at 12:00 p.m., The House Judiciary Committee will hear testimony and vote on the Cannabidiol Oil Bill (CBD) in The Capital Annex Building room 171. <br />
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<strong>How You Can Help</strong><br />
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1. <strong><em>Attend</em></strong> if you can. Bring an 8 x10 picture of your child or loved one who suffers from epilepsy, autism, or any other condition that benefits from CBD. <br />
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2. <strong><em>Visit</em></strong> the offices of your Congressperson and/or Judiciary Committee members before the vote. Tell them why you support CBD oil for Kentucky now. <br />
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3. <strong><em>Call </em></strong>the legislative hotline THIS MORNING at 1-800-372-7181. Tell the operator to leave a message for ALL members of The Judiciary Committee AND your Congressperson to support the passage of SB 124. <br />
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<strong>We ARE NOT DONE YET</strong><br />
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If the bill clears committee today it still needs to pass a full House floor vote (possibly next week) and be signed by The Governor, so please check the <a href="https://www.facebook.com/pages/CBD-Oil-for-Autism-Epilepsy-Kentucky/643096525724262">CBD Oil Facebook page</a> daily for updates. Also, please keep the calls going for the broader medical cannabis bills. Let's get this done.<br />
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Thank you!<br />
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Yours in This,<br />
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Suzanne M. De Gregorio<br />
March 19, 2014<br />
Louisville, Kentucky <br />
<br />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com11tag:blogger.com,1999:blog-7016719073470800779.post-7456764077916606822014-02-22T05:51:00.000-08:002014-06-14T04:11:30.760-07:00Kentucky: Help Cannabidiol Bill Get To Senate Floor<br />
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<img alt=" photo CBD.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/CBD.jpg" height="314" width="320" /><br />
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On Wednesday the Senate Health and Welfare Committee <a href="http://www.ket.org/legislature/archives/?nola=WGAOS+015116&session=wgaos+015">held a hearing on Cannabidiol Oil</a>. Dr. Bret Smith from The University of Kentucky Epilepsy Department testified about cannabidiol research. Committee chair, <a href="http://www.kentucky.com/2014/02/19/3097519/senate-panel-considers-bill-to.html">Senator Julie Denton, will call this bill up for a committee vote with enough support.</a> If it clears the Health and Welfare Committee it will go to the Senate floor for a full vote. <br />
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<strong><span style="font-size: large;">How To Help</span></strong><br />
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Call the legislative hotline at 1-800-372-7181 and tell the operator to leave a message for all members of the Health and Welfare Committee asking them to pass SB 124 favorably from committee. <br />
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<strong><span style="font-size: large;">Medical Hemp and Medical Cannabis</span></strong><br />
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There are differing opinions among activists about the merits and shortcomings of CBD only bills. Though I appreciate all sides of this argument, I come down in support of both the medical cannabis and medical hemp bills (CBD bill). I see these as separate issues because under state and federal guidelines many CBD strains qualify as hemp and not cannabis. Why advocate for hemp as marijuana, especially if doing so could unnecessarily delay access, possibly for years?<br />
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<strong><span style="font-size: large;">Passage of Medical Cannabis Bills Equally Important</span></strong><br />
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Though CBD strains are helpful for conditions like cancer, epilepsy, Crohn's and colitis, and diabetes, many conditions, including some of those mentioned, also benefit from the addition of a full spectrum cannabis strain. Hemp and cannabis strains appear to work in synergy and make one another's components work even better. <br />
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For example, as a cancer patient CBD could help me, but the THCA in full spectrum strains would add additional cancer fighting properties. As a mother and a teacher I don't want to smoke anything or get high. But even with the cannabis strains there are options. I could take a full spectrum cannabis oil extract from raw plant. <a href="http://www.cannlabs.com/blog/understanding-cannabis-part-4-thca/">This method would leave THC in its precursor THCA form, which has no psychoactive components but retains the medicinal properties of THC</a>.<br />
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For other conditions the smoked form is the most medicinal means of delivery. You never know which configuration your doctor will find works best for you. That's why it is important to keep all strains and delivery method options open in legislation. Please support SB 43 and HB 350, The Cannabis Compassion Act, as well.<br />
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Press the Fight,<br />
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Suzanne De Gregorio<br />
Louisville, Kentucky<br />
February 22, 2014<br />
Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com56tag:blogger.com,1999:blog-7016719073470800779.post-82861328668918452932014-02-09T06:28:00.000-08:002014-04-03T07:13:41.834-07:00CBD Oil Bill Introduced in Kentucky & How to Support It<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/juliedenton.jpg.html" target="_blank"><img alt=" photo juliedenton.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/juliedenton.jpg" /></a><br />
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This week in Kentucky <a href="http://legiscan.com/KY/bill/SB124?utm_campaign=rss&guid=2lWa98UnwynF2899iZh2uo">a CBD Oil bill was introduced by Senator Julie Denton</a> (R-Louisville). If passed, doctors affiliated with Kentucky universities that have medical school will be able to prescribe CBD and it may also be used in clinical trials. <br />
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This does not limit by age or condition, which is good since science suggests cannabidiol may help a wide array of conditions, not just epilepsy. Anything from cancer, strokes, Crohn's Disease, Multiple Sclerosis, Parkinson's Disease, and Diabetes to name a few. I will link some of that research at the bottom of this page and the sheer volume will overwhelm you. Read it then answer this question: don't you want the laws already in place in case God forbid yourself or a loved one develops one of these all too common illnesses?<br />
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Sick people need relief, especially given many are exhausting pharmaceutical options. Since beginning this campaign in November my son has failed another pharmaceutical anticonvulsant. This time an adverse reaction to the medication itself gave him the impulse control of a toddler. He was running in front of cars, trying to pull boiling pots of water onto himself, sticking his hand in the garbage disposal, and otherwise harming himself and others. This drug carries the risk of suicidal impulses. Is doing dangerous stuff how suicidal impulses manifest in the minimally verbal? How am I supposed to even know? Thankfully, he has calmed down since we titrated down that drug, but there is still the matter of complete epilepsy control, which we've never attained with anything except steroids. CBD oil can't come to Kentucky fast enough!<br />
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Special thanks to Senator Denton and the other co-sponsors of SB 124. <br />
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<strong>Please read the bill and support SB 124. Call your Senator at 1-800-372-7181 and ask him or her to support SB 124. If you don't know who your senator is give the operator your zip code and she will deliver the message. Thank you.</strong><br />
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Suzanne M. De Gregorio<br />
Louisville, Kentucky<br />
February 9th, 2014<br />
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<strong>Research into Cannabidiol for various conditions. This list is by no means complete. I just had to stop somewhere. </strong><br />
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<strong>Breast Cancer:</strong><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/20859676">Pathways mediating the effects of cannabidiol on the reduction of breast cancer cell proliferation, invasion, and metastasis</a><br />
<a href="http://www.ncbi.nlm.nih.gov/pubmed/20859676">Breast Cancer Res Treat. 2012 May;133(1):401-4</a>.<br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/18025276">Cannabidiol as a novel inhibitor of Id-1 gene expression in aggressive breast cancer cells.Mol Cancer Ther. 2007 Nov;6(11):2921-7.</a> <br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/21915267">PLoS One. 2011;6(9):e23901. doi: 10.1371/journal.pone.0023901. Epub 2011 Sep 7.</a><br />
<a href="http://www.ncbi.nlm.nih.gov/pubmed/21915267">Crosstalk between chemokine receptor CXCR4 and cannabinoid receptor CB2 in modulating breast cancer growth and invasion.</a><br />
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<a href="http://jpet.aspetjournals.org/content/early/2006/05/25/jpet.106.105247.full.pdf+html">Anti-tumor activity of plant cannabinoids with emphasis on the effect of cannabidiol on human breast carcinomaAmerican Society for Pharmacology and Experimental Therapeutics</a><br />
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<a href="http://www.molecular-cancer.com/content/9/1/196">Cannabinoids reduce ErbB2-driven breast cancer progression through Akt inhibitionMolecular Cancer 2010, 9:196</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/22776349">Cannabinoids: a new hope for breast cancer therapy?</a><br />
<a href="http://www.ncbi.nlm.nih.gov/pubmed/22776349">Cancer Treat Rev. 2012 Nov;38(7):911-8.</a><br />
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<a href="http://www.pnas.org/content/95/14/8375.full.pdf+html">The endogenous cannabinoid anandamide inhibits human breastcancer cell proliferationProc. Natl. Acad. Sci. USAVol. 95, pp. 8375–8380, July 1998</a><br />
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<a href="http://abcnews.go.com/Health/Healthday/story?id=4509456">Cannabis Compound May Stop Metastatic Breast Cancer - ABC News</a><br />
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*There is research for cannabidiol and other types of cancer, but in the interest of space I'm focusing on the most common one. For a more complete list click <a href="http://www.endalldisease.com/34-medical-studies-proving-cannabis-cures-cancer/">here</a>.<br />
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<strong>Stroke</strong><br />
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<a href="http://www.mdpi.com/1424-8247/3/7/2197">Pharmaceuticals 2010, 3(7), 2197-2212; doi:10.3390/ph3072197</a><br />
<a href="http://www.mdpi.com/1424-8247/3/7/2197">Therapeutic Potential of Non-Psychotropic Cannabidiol in Ischemic Stroke</a><br />
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<a href="https://stroke.ahajournals.org/content/36/5/1071.full">Cannabidiol Prevents Cerebral Infarction Via a Serotonergic 5-Hydroxytryptamine1A Receptor–Dependent Mechanism </a><br />
<a href="https://stroke.ahajournals.org/content/36/5/1071.full">Journal - Stroke</a><br />
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<strong>Diabetes</strong><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/16698671">Autoimmunity. 2006 Mar;39(2):143-51.</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/16698671">Cannabidiol lowers incidence of diabetes in non-obese diabetic mice.</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2955420/?tool=pubmed">Curr Pharmacogenomics Person Med. 2009 September; 7(3): 215–222. </a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2955420/?tool=pubmed">Cannabidiol As a Putative Novel Therapy for Diabetic Retinopathy: A Postulated Mechanism of Action as an Entry Point for Biomarker-Guided Clinical Development</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2270485/">Cannabidiol Arrests Onset of Autoimmune Diabetes in NOD MiceNeuropharmacology. 2008 January; 54(1): 244–249. </a><br />
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<a href="http://www.scielo.br/scielo.php?pid=S1516-44462008000300015&script=sci_arttext">Rev. Bras. Psiquiatr. vol.30 no.3 São Paulo Sept. 2008</a><br />
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<a href="http://www.scielo.br/scielo.php?pid=S1516-44462008000300015&script=sci_arttext">Cannabidiol: from an inactive cannabinoid to a drug with wide spectrum of action</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2228254/">Am J Physiol Heart Circ Physiol. 2007 July; 293(1): H610–H619. </a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2228254/">Cannabidiol attenuates high glucose-induced endothelial cell inflammatory response and barrier disruption</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/24120371">Eur J Pharmacol. 2013 Nov 15;720(1-3):376-82. 2013 Oct 8. </a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/24120371">Cannabinoids alter endothelial function in the Zucker rat model of type 2 diabetes.</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/21238581">Free Radic Biol Med. 2011 Sep 1;51(5):1054-61. 2011 Jan 14.</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/21238581">Cannabidiol as an emergent therapeutic strategy for lessening the impact of inflammation on oxidative stress.</a><br />
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<strong>Crohns's Disease and Col</strong><strong>itis</strong><br />
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<a href="http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0028159">Cannabidiol Reduces Intestinal Inflammation through the Control of Neuroimmune Axis Mariateresa Cipriano, Published: December 06, 2011•DOI: 10.1371/journal.pone.0028159</a><br />
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<a href="https://lirias.kuleuven.be/bitstream/123456789/356043/1/ptr4781.pdf">Cannabidiol in Inflammatory Bowel Diseases: ABrief OverviewPHYTOTHERAPY RESEARCHPhytother. Res. (2012)</a><br />
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<a href="https://www.thieme-connect.com/ejournals/abstract/10.1055/s-0031-1278443">Z Gastroenterol 2011; 49 - A12<br />
DOI: 10.1055/s-0031-1278443</a><br />
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<a href="https://www.thieme-connect.com/ejournals/abstract/10.1055/s-0031-1278443">Effect of different dose cannabidiol treatment on experimental induced colitis</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/24238999">Cytokine. 2014 Feb;65(2):236-44. doi: 10.1016/j.cyto.2013.10.006. Epub 2013 Nov 13.</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/24238999">Interleukin 17A evoked mucosal damage is attenuated by cannabidiol and anandamide in a human colonic explant model.</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/22414698">Pharmacology. 2012;89(3-4):149-55. doi: 10.1159/000336871. Epub 2012 Mar 12.</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/22414698">Topical and systemic cannabidiol improves trinitrobenzene sulfonic acid colitis in mice.</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/19690824">J Mol Med (Berl). 2009 Nov;87(11):1111-21. doi: 10.1007/s00109-009-0512-x. Epub 2009 Aug 20.</a><br />
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<a href="http://www.ncbi.nlm.nih.gov/pubmed/19690824">Cannabidiol, a safe and non-psychotropic ingredient of the marijuana plant Cannabis sativa, is protective in a murine model of colitis.</a><br />
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<strong>Autism & Epilepsy</strong><br />
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There are dozens of animal model studies and a case series report on epilepsy and a few on autism. Rather than re-list them all now <a href="http://cbdoil.blogspot.com/p/about-cbd-oil.html">click here for the full list</a>.<br />
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**Please note: other sativa and indica strains can work in synergy with high CBD strains to produce even better medicinal impact for conditions like cancer and PTSD (which plagues our veterans at record numbers now). SB 124 legalizes the high CBD (cannabidiol) strain. Therefore, <a href="http://www.ky4mm.com/senate-bill-43">please also take a look at SB 43</a>, which would legalize all of them for medicinal purposes only and consider supporting it as well. Thank you.<br />
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<br />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com5tag:blogger.com,1999:blog-7016719073470800779.post-66900748806617578932014-02-08T02:15:00.000-08:002014-02-08T02:43:30.308-08:00Interview with Cannabinoid Researcher Pritesh Kumar<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/pritesh.png.html" target="_blank"><img alt=" photo pritesh.png" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/pritesh.png" /></a><br />
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This is an interview with cannabidinoid researcher, Pritesh Kumar. Mr. Kumar earned a B.S in Biology at The University of Kentucky and a M.S. in Pharmacology at The University of Louisville. In 2014, he will earn his PhD in Pharmacology from The University of Louisville. Since 2009, Pritesh has been a research scientist at The University of Louisville Department of Pharmacology and Toxicology. In 2013, he joined Quantum 9, Inc. Cannabis Consulting and Technology. <br />
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<strong>Suzanne:</strong><br />
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Kentucky is fortunate to have a scientist like yourself, with serious interest in the endocannabinoid system and cannabinoids, hailing from our state. Please tell us about your interest in the subject and the research you have done thus far.<br />
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<strong>Pritesh Kumar:</strong> <br />
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I have always been fascinated in the endocannabinoid system for several reasons. The way this system modulates and regulates our homeostasis is truly breathtaking. Name any condition or pathology with an inflammatory component, and 95 % of the time the endocannabinoid system is found to play some sort of role. Even from an evolutionary perspective, it is truly amazing that this system has been found in many phylogenetically diverse organisms. <br />
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I apologize for the digression. So, our research currently focuses on how ligands (chemical compounds) bind and interact with the cannabinoid receptor 2 (CB2). This receptor is predominantly localized in the peripheral system in immune cells, T cells, B cells, etc. The reason why this receptor is an attractive therapeutic target is because of it’s minimal presence in the central nervous system (CNS). Therefore, any medication targeting this receptor will not elicit the “high.” <br />
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Recently, we have been testing the current FDA-approved medications on the market to determine if they have any effects on the endocannabinoid system. As I mentioned previously, we found that a commonly prescribed drug for osteoporosis in post-menopausal women (Raloxfiene) is acting on the CB2 receptor. This bring us to an important point. Patients should have access to all the information of the drug they are taking. For example, it is well known that Raloxifene acts through the estrogen receptor to produce its effects. However, we found that it also interacts with CB2. Now, this interaction could help explain some of its known therapeutic effects or it’s mechanism of action. Furthermore, this drug could be “repurposed” for a different indication for which CB2 is a target (pain, inflammation). <br />
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<strong>Suzanne:</strong><br />
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Since your PhD is in pharmacology you would be a great person to address a specific concern of many medical cannabis advocates. Various compounds in the plant appear to work together in an entourage effect to produce medicinal benefits. Many of us are concerned that once they start <br />
isolating these compounds in labs and producing them synthetically for drugs that might not work as well as full plant and there will be more side effects. Are these concerns warranted? <br />
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<strong>Pritesh Kumar:</strong><br />
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These concerns are warranted. From a pharmacology perspective, it is attractive to isolate a single component and market that as most drugs on the market have a single active ingredient. However, the cannabis plant displays a rather unique pharmacology. Plant-derived cannabinoids often work in concert to produce what is known as the "entourage effect." In this sense, a defined concentration or mixture of cannabinoids is necessary to reach therapeutic effect. For example, Sativex is marketed in Canada for the treatment of multiple sclerosis and this drug contains a 1:1 mixture of THC to CBD. <br />
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As to your second question regarding if more side effects will be produced if only the synthetic form is available and marketed. This a bit of a grey area. For example, synthetic cannabinoids are already out on the market and are available at gas stations and corner stores in the form of "K2 or Spice." These synthetic cannabinoids (mainly JWH derived) are very dangerous and consumption has led to a rise in visits to the ER because the compounds in these products are chemical analogues of THC are significantly more potent than THC. Unlike THC which is a partial agonist, these compounds are full agonists for the cannabinoid receptor 1 (CB1).<br />
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From a pharmacological perspective, things get complicated when you have to predict how multiple cannabinoids will effect the body. It is often easier to investigate a single component or compound rather than a mixture. That being said, for the cannabis plant, there are multiple layers that often contribute to the beneficial effect of this plant (THC, CBD, CBG, CBN, etc). To answer your question, we still do not know if synthetics will have a worse side effect profile compared to the plant.<br />
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<strong>Suzanne:</strong> <br />
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What is next in terms of your research? In what direction are you looking once your PhD is completed this year?<br />
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<strong>Pritesh:</strong> <br />
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I am considering several options at the moment. I will continue to do research but from a slightly different perspective. I am personally interested in the plant cannabinoids as they may hold tremendous therapeutic benefit and represent an untapped source of potentially novel medications. I will stay on as consultant for Quantum 9, Inc. which is one of few companies out there that are legitimately interested in helping patients in the long run. Personally, I envision operating a company with a research facility in the state of Kentucky which will be heavily focused on the development of medications from plant cannabinoid extractions and perform laboratory testing for cannabis samples once this bill is passed.<br />
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<strong>Suzanne:</strong> <br />
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Is there anything else you would like to say to our readers about the endocannabinoid system, cannabinoids, and the future of medicinal cannabis?<br />
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<strong>Pritesh:</strong> <br />
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To the readers, I want to say that the endocannabinoid system is a beautiful network of receptors and enzymes that regulate a broad spectrum of signaling pathways in our bodies. The future of cannabis-based medications is still in its infancy and the rate at which we are developing these types of medications is rapidly increasing. <br />
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Pritesh Kumar<br />
Cannabinoid Research Scientist<br />
Quantum 9, Inc.<br />
351 W Hubbard Suite 303 Chicago, IL 60607<br />
888.716.0404 ext 809<br />
<a href="http://www.quantum9.net/">www.quantum9.net</a> <br />
LinkedIn| <br />
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<strong>Pritesh Kumar's Peer Reviewed Publications:</strong><br />
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1) Kumar A, Qiao Z, Kumar P, Song ZH. (2012). Effects of Palmitoylethanolamide on Aqueous Humor Outflow. Invest Ophthalmol Vis Sci. Accepted doi: 10.1167/iovs.11-9294 <br />
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1.Kumar A, Qiao Z, Kumar P, Song ZH. (2012). Involvement of a non-CB1/CB2 cannabinoid receptor in the aqueous humor outflow-enhancing effects of abnormal-cannabidiol. Exp Eye Res. Accepted <a href="http://dx.doi.org/10.1016/j.bbr.2011.03.031">http://dx.doi.org/10.1016/j.bbr.2011.03.031</a><br />
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2.Kumar P, Song ZH. (2013). Identification of raloxifene as a novel CB2 inverse agonist. Biochem Biophys Res Commun. doi: 10.1016/j.bbrc.2013.04.040. [Epub ahead of print]<br />
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3. Kotsikorou E, Navas F 3rd, Roche MJ, Gilliam AF, Thomas BF, Seltzman HH, Kumar P, Song ZH, Hurst DP, Lynch DL, Reggio PH (2013).The importance of hydrogen bonding and aromatic stacking to the affinity and efficacy of cannabinoidreceptor CB2 antagonist, 5-(4-chloro-3-methylphenyl)-1-[(4-methylphenyl)methyl]-N-[(1S,2S,4R)-1,3,3-trimethylbicyclo[2.2.1]hept-2-yl]-1H-pyrazole-3-carboxamide (SR144528).<br />
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4. Kumar P, Song ZH. (2013). Structure-activity relationships of fatty acid amide ligands in activating and desensitizing G protein-coupled receptor 119. Eur J Pharmacol. doi: 10.1016/j.ejphar.2013.10.044.<br />
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Kumar P, Song ZH (2013). CB2 cannabinoid receptor is a novel target for third-generation selective estrogen receptor modulators bazedoxifene and lasofoxifene. Biochem Biophys Res Commun. Accepted. <br />
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1.Kumar P, Carrasquer C, Carter A, Song ZH, Cunningham AR (2014). A categorical structure-activity relationship analysis of GPR119. Journal of Molecular Modeling. In press. <br />
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Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com22tag:blogger.com,1999:blog-7016719073470800779.post-5497323709985851982014-01-22T03:12:00.001-08:002014-01-24T15:44:54.939-08:00Allow CBD Oil in Kentucky for Savannah<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/marygoss3.jpg.html" target="_blank"><img alt=" photo marygoss3.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/marygoss3.jpg" height="320" width="240" /></a><br />
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<span style="font-family: inherit;">This is an interview with Mary Gross of Junction City, Kentucky about her infant daughter, Savannah. I apologize in advance for the wide breaks between paragraphs. It is a HTML coding glitch that I'm trying to work out. Since we have a medical cannabis bill pending in Frankfort, I figure it is more important to get these stories about sick Kentucky kids out than to worry about them looking perfect on the screen. In the meantime, be sure to scroll all the way down so you see everything.</span><br />
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<span style="font-family: inherit;">Suzanne:</span><br />
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<span style="font-family: inherit;">Mary, tell us about your infant daughter Savannah.</span><br />
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<span style="font-family: inherit;">Mary:</span><br />
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<span style="font-family: inherit;">Her full name is Savannah Lynn Piscatelli. She was born in November full term. She had a cleft palate and a club foot but other than that was declared healthy. She spent the first four days of her life in Neo-natal Intensive Care Unit learning to eat with the cleft. Once that was accomplished they sent us home.</span><br />
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<span style="font-family: inherit;">She seemed fine at that time but the next day I noticed her doing something strange. It looked like a sneeze but it was different. I called to make an appointment at her pediatrician but they told me she needed to go to the emergency room right away. They believed it was infantile spasms and said she would have to go to the University of Kentucky hospital in Lexington. We spent two weeks at UK. After two video EEGs, numerous blood and urine tests, an MRI, and a spinal tap we were given the devastating news that our baby was indeed having infantile spasms, which are a type of seizure. They said she has Ohtahara Syndrome. After looking it up online we were heartbroken: a life expectancy of two years in 50% of children and the other 50% would suffer multiple seizure types throughout their lives, which are practically uncontrollable so they would have extreme developmental delays. </span><br />
<span style="font-family: inherit;">The University of Kentucky Hospital had never seen this before and had no experience with Ohtahara. </span><br />
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<span style="font-family: inherit;">They tried a few anti seizure meds at the hospital with no success. Eventually they found a concoction of pharmaceuticals that took her 200-300 spasms a day down to about 75-100. They said it would be a trial and error of meds that will ultimately stop working anyway. We heard from her neurologist after about three weeks at home. He asked us if we would rather try ACTH shots, which are painful and would compromise her immune system in the middle of flu season, or try Sabril, which would more than likely damage her vision permanently. Neither of these were guaranteed to work. It was the hardest decision I have ever had to make with one of my children. It took several sleepless nights before we decided to go with Sabril because the flu would kill her for sure if she got it. The Sabril has reduced her seizures down to about ten a day but she is also is on two other anti seizure meds, as well as a supplement to try to combat the vision loss. She must see an eye doctor every three months but they won't know if her vision is being affected until she is much older and by that time it will be to late.</span><br />
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<span style="font-family: inherit;">She sleeps most of the day due to the drowsiness caused by all of her meds.</span><br />
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<span style="font-family: inherit;">Suzanne:</span><br />
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<span style="font-family: inherit;">Oh, Mary. I can't even imagine. I'm so sorry. I pray we can pull off a miracle and get CBD oil in Kentucky soon so your daughter's health has a chance to improve. Why do you think CBD oil might help Savannah?</span><br />
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<span style="font-family: inherit;">Mary:</span><br />
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<span style="font-family: inherit;">The CBD oil has proven to reduce our even eliminate seizures in some cases. It has proven to promote brain cell growth. I have done my research and the two leading causes of death in ohtahara children are chest infections (which I can help prevent by keeping Savannah safe in her home away from people who are sick and keeping my home sanitized, as well as monitor her feeding to prevent aspiration pneumonia) and the other is SUDEP (Sudden Unexpected Death in Epilepsy). I have no control over that beyond finding a way to decrease or eliminate her seizures (which, as previously stated, is being done by CBD oil).</span><br />
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<span style="font-family: inherit;">These children also suffer severe developmental delays. Some of it is caused by the syndrome itself, but the seizures also play a very big part in that. Her seizures are near uncontrollable with pharmaceuticals. If we are able to find a medication that stops the kind of seizure she is having it will just transform into another type of seizure. The medications the doctors give her are only temporary solutions if they can find a solution at all. Those medications will have to be changed often and dosages adjusted frequently. Each of those carry their own horrible side effect that will slowly tear down her little body and increase her developmental delays. </span><br />
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<span style="font-family: inherit;">The oil is one treatment; no bad side effects! This syndrome also causes limb stiffness which makes it almost impossible to walk. The THC (low and non psychoactive) in the oil would work as a muscle relaxant to combat the stiffness. While she will never fall into her age category for development, with CBD she could learn to walk, to talk, to understand! Without the oil she doesn't stand a chance for any of that. She will be in a wheelchair, lost in a cloud of brain deterioration. It will be over my dead body that happens without a fight. I will leave this state with resentment and go to a state that has compassion and wants to see my daughter and so many others thrive. I would go to hell and back for her if that's what I had to do.</span><br />
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<span style="font-family: inherit;">This place (Kentucky) I have loved for my thirty-three years, the place my parents and their parents called home: to turn their back on my baby and deny her this would be a complete disgrace in every sense of the word. And quite frankly, it pisses me off that I would have to fight and beg and plead for this. I have been loyal to Kentucky and it's about damn time it be loyal to me! I'm sorry for the language. This is just so ridiculous to me that there is even a question as to whether or not this should be available. It's a no brainer. It's the greed that makes this an issue for politicians. No real justification from them. And while they pay their little games, our children are suffering and dying. It breaks my heart every day and makes me want to run from this place as fast as I can to a place that offers hope for tomorrow. A place like Colorado. I'm so scared to make this move. It takes me completely out of my comfort zone. I'm a simple country girl who can count the times I've left this state for anything on one hand. I so badly wish it didn't have to be this way.</span><br />
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<span data-measureme="1"><span class="null">Suzanne:</span></span><br />
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<span data-measureme="1"><span class="null">I know. It is ridiculous. As I write this my son is thrashing about in pain. But if I go comfort him that makes things worse so I just wait it out, tell him it will be okay, and hope it ends quickly. This is our lives and it does not have to be this way. There are children with my son's same conditions in Colorado who no longer live like this. They thrive now. </span></span><br />
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<span data-measureme="1"><span class="null">It is often said that Kentucky is last in everything. I wonder if sometimes that is because we refuse to make key choices at opportune times. By the time we do eventually make those choices everyone else is already out ahead of us. With that said, I'm madly in love with this place. I always say I may not have been born here but I will die here. I just want us to get with the 21st century on this important issue that concerns sick children and adults.</span></span><br />
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<span data-measureme="1"><span class="null">So what is the plan as of today: is your family definitely moving to Colorado or will you wait out the legislative session to see what happens? </span></span><br />
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<span data-measureme="1"><span class="null">Mary:</span></span><br />
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<span data-measureme="1"><span class="null">My plan right now is to go to Colorado and establish residency, see doctors, and apply for the red card when I get my income taxes back in about a month or so. It is going to be so costly I just can't afford to do it right now. While I wait for the red card and for our name to come up on the Charlotte's Web waiting list I will come back to Kentucky. Once it is available, I will be going up with Savannah and my three year old daughter, Abigail Piscatelli. My boyfriend, their father, John Piscatelli, will have to stay in Kentucky to work. He has been at his job for over ten years and holds a pretty high position with them. He will support us while we are there and come visit when we can afford that trip. We will do that for a few months as we go through a trial of the CBD Oil. If all goes well John will relocate with us and Colorado will become our home until Kentucky has access to oil.</span></span><br />
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<span data-measureme="1"><span class="null">I dread splitting my family up. We have never been apart and my girls love their daddy very much. I know this is going to be very hard for them, especially Abby. She is a daddy's girl if there ever was one! I have faith that Kentucky will legalize, but I don't have faith that they will really get to work on it and make it accessible to us quickly. Time is of the essence. I'm afraid it could take a year or more to actually have things up and running if the bill does pass. With a life expectancy of only two years, waiting around to see is not really an option for us.</span></span><br />
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<span data-measureme="1"><span class="null">Suzanne:</span></span><br />
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<span data-measureme="1"><span class="null">Another family having to split up to get their child what she needs. It is the same story we hear time and time again and yet my ears never get used to it. It is still as shocking to me reading your words as it was when I read those first news reports of parents moving to Colorado so their kids could get the oil. I promise you; we will not stop fighting in Kentucky until all children who need this can legally get the oil here. We will not stop until your family, The Byrds, and the nine other Kentucky families in Colorado can come home. </span></span><br />
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<span data-measureme="1"><span class="null">Is there anything you would like the state legislature to know? We have stated our case; now the ball is in their court.</span></span><br />
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<span data-measureme="1"><span class="null">Mary:</span></span><br />
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<span data-measureme="1"><span class="null">I would just like them to know that this issue has been put on the back burner too long. We must make change for the well being of the residents of this great state. We are the people they represent and the people say legalize! Don't make us suffer any more. Don't make us leave our homes. Sooner or later the fact that people are fleeing will catch up to Kentucky. This state needs its people. Its believers. Its supporters. So the time has come for politicians to be the believers and the supporters instead of sitting back and watching us go without even a fight.<br /><br /><a href="http://mycn2.com/politics/ailing-kentuckians-make-pitch-for-benefits-of-medical-marijuana-in-second-hearing-of-the-session">Mary's Interview With CN2 Louisville At The CBD Oil Senate Committee Hearing On January 15, 2014 </a>
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Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com35tag:blogger.com,1999:blog-7016719073470800779.post-76451134894354590622014-01-21T13:16:00.000-08:002014-01-21T17:47:48.845-08:00Testimony I Would Have Given at Kentucky's Senate Committee Hearing on CBD Oil<img alt="" aria-busy="false" aria-describedby="fbPhotosSnowliftCaption" class="spotlight" height="320" src="https://scontent-b-atl.xx.fbcdn.net/hphotos-prn2/t1/1538908_10152208074669283_972238878_n.jpg" width="317" /><br />
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I intended to sign up to testify at the Senate Health and Welfare Committee hearing for CBD Oil on January 15, 2014. However, I wasn't able to put my words together in time on account of my recent cancer diagnosis, work, and managing Alex's regressions. A week has passed but this unspoken testimony sticks in my brain like a splinter, so I've decided to bare it here. Thank you for listening. <br />
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<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"><strong>ALEX</strong></span><br />
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Alex was born a healthy baby, but by age three there were undeniable red flags. He was so high functioning, though, that the professional evaluating him came back three times before she would even render a diagnosis: Autism. Therapists told us Alex appeared to be a genius, so we had every reason to believe his future could still be bright. But by age six he had an IQ of 52 and was back in diapers. Our child was deconstructing before our eyes and nobody could tell us why.<br />
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Eventually we learned that Alex had Multi-Focal Petite Mal Epilepsy and that this was likely responsible for his severe regressions. Simply put, some part of his brain experiences epileptiform activity all day long.<br />
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Alex's was prescribed pulse steroid doses for two years. Prednisone was a miracle. My son started talking again and most autistic stereopathy disappeared: arm flapping, repetitive behaviors, verbal jargoning. You name it. Gone. Progress came with great risk, though: osteoporosis, adrenal disease, diabetes. So steroids were abandoned, taking rapid developmental progress and complete seizure control with them. <br />
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My son's first anticonvulsant made him obese and raised his liver enzymes, so we stopped giving him that. The new medication gives him the impulse control of a toddler. Now I must constantly be on Alex or he may run into traffic, pull a boiling pot of water onto himself, or try to jump out of a moving vehicle. I won't even get into the aggression. And so, we see the neurologist at the end of the month to possibly try yet another anticonvulsant that will probably not fully control his epilepsy but will impart God knows what new side effects.<br />
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There are children in Colorado with Alex's conditions taking CBD Oil who don't live like this anymore. They have impulse control now, less repetitive behaviors, less rage. They appear to have all of the benefits Alex had on steroids without the risky side effects. Without any side effects at all, really. My son deserves that chance, too. <br />
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<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"><strong>MY CANCER</strong></span><br />
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On January 3rd I was diagnosed with cancer. The peer review studies on CBD and full spectrum cannabis's ability to fight cancer seem endless. Here is a recent report from CNN's Sanjay Gupta called CBD vs. Cancer.<br />
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I want to access what I believe is my best chance at survival so I can take care of this child who will need me much longer than most kids need their parents. As it stands now, to access this I would have to leave my family and move to a legal state by myself. Since I would only do this as an adjunct to conventional cancer options, moving would make those treatments out-of-network, which I cannot afford. And besides, I need my family now more than ever. I don't want to be alone in a studio apartment somewhere in Denver throwing up into a garbage day-after-day. <br />
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<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"><strong>WHY DON'T YOU JUST............</strong></span><br />
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I'd like to address some of the suggestions often made to those of us seeking legal access to CBD in prohibitive states and state why these are not options for my family.<br />
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<em><span style="font-size: large;">1. "Why don't you just move? I'd move in a heartbeat if it were my kid."</span></em><br />
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Would you? Would you, really? Does anyone really think it is that easy? Ask the families who <em>just moved</em> how that is working out for them. Yes, their epileptic children are doing better and that makes it all worthwhile, but these families are struggling. Jobs are scarce. Some families have had to split up, with half the family staying back home to make income while the other parent is in Colorado with the sick child who cannot legally leave the state with her medication. There are siblings missing their mothers, retirement funds depleted, families without support. All because politicians in home states don't want to allow this because they think it's too hard. <br />
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If we were to move it would take my husband a year to get his professional license set up. And, starting over in a new state with no connections would cut his income by half. Autism is expensive and requires every penny we make now, so my family couldn't make it on less. And, we can't risk our health insurance now since I need that now for cancer treatment. This is not the time for my family to be starting over. We shouldn't have to.<br />
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<em><span style="font-size: large;">2. "Why don't you just buy it on the Black Market? If it were my kid I'd find a way to get it."</span></em><br />
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In his documentary "Weeds" Sanjay Gupta mentioned how marijuana on the black market is being bred to contain up to 30 % THC (unaltered strains are under 10%) and that this is why some people have adverse reactions to it like panic disorders. There's no way I'm giving that to my son. And, since high CBD strains do not produce a high and are not smoked, they aren't exactly available on the black how market anyhow. <br />
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Besides, I place a high premium on being a law abiding citizen. I just do. I'm a mother. A pre-school teacher. I don't care for anything mind altering. I even refused prescription medication after my C-Section surgery and probably will after my lumpectomy, too. Plus, my future is already so uncertain. I still don't even know what cancer treatments I may need. I don't need to be sitting in a jail cell with my bald chemo head when I should be spending every precious moment with my family.<br />
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<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"><strong>I HAVE A BETTER IDEA</strong></span><br />
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I have a better idea. Help us. Just help us please. Co-sponsor SB 43, The Cannabis Compassionate Care Act and update SB 50 to allow CBD Oil into Kentucky as hemp.<br />
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Thank you.<br />
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Sincerely,<br />
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Suzanne Maria De Gregorio<br />
January 21st, 2014<br />
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<iframe allowfullscreen="" frameborder="0" height="315" src="//www.youtube.com/embed/6X8GM66RmxU" width="560"></iframe><br />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com3tag:blogger.com,1999:blog-7016719073470800779.post-11822219462145366212014-01-11T18:06:00.005-08:002014-01-11T18:06:46.249-08:00Epilepsy/High CBD Hemp Oil Success Story: Harper<img alt="Hempmeds Px - San Diego, CA" class="profilePic img" src="https://fbcdn-profile-a.akamaihd.net/hprofile-ak-prn2/s160x160/1379749_506016786162131_1793570398_a.png" /><br />
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Today I interview Penny Howard of Hope 4 Harper. Penny has had success reducing Harper's seizures with a legal-in-all-fifty-states high CBD hemp oil.<br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Hi Penny. Tell us about Harper. What is her condition?</span><br />
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<strong>Harper is our youngest daughter, age three and a half, with CDKL5 Disorder. She was born April 12, 2010. In hindsight there were signs of problems while in utero but with no special needs or epilepsy in our family we just didn't know. It wasn't until two weeks of age that we noticed her first seizure and that's because my aunt Marlene came to visit and gave herself the job of holding the new baby Allllll day! Three times she noticed jerking that seemed abnormal to her so after the first two times she asked us about it. With Harper being our second child we did not really have time to chase after her two year old sister and hold her all day so we never noticed this. But after it was brought to our attention I held her all night and there it was: seizure! My heart sank! I knew right away without a doubt what it was. And, May 1st our lives were forever changed, never again to be the same as they had been, or even what we had dreamed them to be. Not that that is necessarily a bad thing, because now we have a whole new appreciation for life: ours, Lily's, Harper's and how we are supposed to be living it. A new view on our bodies, our environment and how we are supposed to be treating it. We even saw the reality of medicine, which we completely misunderstood. So although we are sad for the life we lost, we are grateful that Harper has come to show us the life we didn't know existed.</strong><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"> Is CDKL5 treatable with anticonvulsants? What has been Harper's experience with those?</span><br />
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<span style="font-family: inherit;"><strong>Penny:</strong></span><br />
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<strong>There is no AED or combination of AEDs or other epilepsy therapy (ie. Vagal Nerve Stimulator, Ketogenic Diet) that can <em>control</em> seizures for CDKL5 Disorder.</strong><br />
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<strong>Those affected suffer from intense, uncontrollable seizures, sensory issues, gastrointestinal and cardiological difficulties, visual impairment, scoliosis, and severely delayed developmental growth. The severity of Harper's particular case is yet unknown, but we remain hopeful.</strong><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">You decided to try Harper on a high cannabidiol hemp oil that is legal in all fifty states to see if it would help her seizures. Can you tell us about that?</span><br />
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<strong>After a year of hearing of the success with some trying Charlotte's Web, my husband Dustin decided to search legal alternatives and found Hemp. Being legal we decided to try it without hesitation and were cautiously impressed with the results. We plateaued after two months of use but even at our plateau Harper is experiencing less seizures per week/month than she had prior to starting hemp.</strong><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">That's fantastic! I have spoken with another family whose child experiences seizure reduction on legal, high CBD Hemp Oil and a dozen or so who did not. That can be true for any intervention. I've even spoken with a mother whose epileptic child saw no seizure reduction with Charlotte's Web. Each family has to weigh its options: if something is safe and affordable do you give it a try? It sounds like you are quite pleased that you did.</span><br />
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<strong>Penny:</strong><br />
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<span style="font-family: inherit;"><strong>Yes I agree. Like with any type of seizure therapy, be it AED, VNS, Diet or Hemp/Cannabis it will not work for everyone. Just because Real Scientific Hemp Oil did not help with improvement that doesn't mean Charlotte's Web won't help you and vise versa. For us it wasn't about all or nothing but rather improvement. Harper is still on her AED, Depakote, while using Hemp.</strong></span><br />
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<span style="font-family: inherit;"><strong>We are happy with our choice to try RSHO. I understand the concern in trying something new. When Harper was 20 months she was sitting supported, drinking from a straw cup and eating very well many foods by mouth, pulling to crawl position and really in a good place with 3 seizures per day lasting about 2-3 minutes long and none at night. I wanted better for her so I worked with a hospital nutritionist in an effort to gain better seizure control. Our grand plan backfired with massive debilitating seizures lasting 8-15 minutes long, 24+ times per day and night. They were so incredibly intense - Harper dislocated her jaw. She lost EVERYTHING including her ability to eat, and even to self sooth by sucking on her fingers. Everything she spent twenty months working so hard to gain was lost and has yet to return all because we tried something new. It's a risk! But I never want to say that I didn't try to do everything I possibly could to help make her life the absolute best it could be. </strong></span></div>
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<strong> </strong></div>
<div style="background-color: transparent; font-style: normal;">
<span style="font-family: inherit;"><strong>That tragic event landed us in Pediatric Intensive Care Unit for two weeks, where I realized although Harper could physically do nothing she still understands. That changed our focus from physical to communication. We have spent our time helping her learn to communicate and working to get her an eye gaze communication device. My dad always says, "we live in a world of words." Harper's success in life will be determined by her ability to communicate not her physical abilities. </strong></span><br />
<span style="font-family: Times New Roman;"><br /></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br /></span></div>
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Can you estimate a percentage of seizure reduction you are seeing?</span><br />
<br />
<br />
<br />
<strong>Penny:</strong><br />
<strong><br /></strong><br />
<strong></strong><br />
<div>
<strong>The week prior to starting RSHO Harper had 64 seizures now she runs between 28-35 per week. </strong></div>
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne: </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br /></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">What brand of high CBD hemp oil does Harper take?</span><br />
<br />
<br />
<strong>Penny:</strong><br />
<strong><br /></strong><br />
<strong><br /></strong><br />
<img alt="RSHO™ 6 Pack" src="http://hempmedspx.com/wp-content/uploads/2014/01/spRSHO21.png" /><br />
<strong><br /></strong><br />
<div style="background-color: transparent; color: black; font-family: HelveticaNeue, "Helvetica Neue", Helvetica, Arial, "Lucida Grande", sans-serif; font-style: normal;">
<span style="font-family: inherit;"><strong>Harper uses HempMedsPx Black OIl. We recently attempted to add a high does of their Gold to her mix. The black is more whole plant based and the gold is the black filtered one more time. When we used this combo in the past I noticed problems when adding the gold, but I added it at a low does. This time I went for it and added a high amount of gold and kept her black stable. It's still too soon to determine how this combo will impact her seizure control. But so far it's not making it worse! That's a plus!</strong> </span><br />
<span style="font-family: inherit;"> </span></div>
<br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br /></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">What does it cost roughly per month?</span><br />
<br />
<br />
<br />
<strong>Penny:</strong><br />
<strong><br /></strong><br />
<strong></strong><br />
<div style="background-color: transparent; color: black; font-family: HelveticaNeue, "Helvetica Neue", Helvetica, Arial, "Lucida Grande", sans-serif; font-style: normal;">
<span style="font-family: inherit;"><strong>Thanks to HempMedsPx's willingness to establish an "Epilepsy Program" a sample tube runs $50 each plus shipping. Non-sample tubes run about double/triple that depending on your preference of black or gold. Seeing as Harper is on the small side we run through about 1 tube of black in 5 weeks. I think gold will be about the same but again it's still too new to tell. </strong></span><br />
<span style="font-family: Times New Roman;"><br /></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br /></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Has Harper shown improvement on RSHO Hemp Oil?</span><br />
<span style="font-family: Times New Roman;"><br /></span><br />
<strong><span style="font-family: inherit;">Penny:</span></strong><br />
<strong><span style="font-family: inherit;"><br /></span></strong><br />
<span style="font-family: Helvetica;"><span id="yiv2409091219yui_3_13_0_ym1_7_1389356630914_22"><strong><span style="font-family: inherit;">I feel we saw improvement pretty quickly with Harper but I approached her use of this product cautiously optimistic. We document her seizure activity, along with food consumption and potty in a book organized by time of day. The week prior to starting RSHO Harper had sixty-four seizures. The week she started she had twenty seizures and week two was an amazing ZERO visible seizures. What I mean by visible are seizures we actual see compared to the brain activity considered a seizures that we do not see. Harper's last video EEG indicated she has over forty plus seizures per day of which we saw ten. After just over three months on hemp Harper has settled into about 30+/- seizures per week. Still a reduction and we and many others have noticed more interaction, eye contact and alertness from her.</span></strong> </span></span><br />
<span style="font-family: Times New Roman;"><br /></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><br /></span><br />
<span style="font-family: Times New Roman;"><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Can you please tell our readers how RSHO Hemp Oil is different from hemp oil they might find on grocery store shelves?</span></span><br />
<span style="font-family: Times New Roman;"><span style="font-family: Helvetica;"></span></span><br /></div>
<br />
<br />
<strong><span style="font-family: inherit;">Penny: </span></strong><br />
<strong><span style="font-family: inherit;"><br /></span></strong><br />
<div class="yiv2409091219yui_3_13_0_ym1_1_1389360685520_32143 yui_3_13_0_ym1_1_1389452184974_2837
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<strong><span style="font-family: inherit;">PLEASE NOTE: I am not an RSHO expert! I am just a mom who wanted a legal alternative to medical marijuana/Charlotte's Web because we live in Texas where it is not yet legal to try. </span></strong></div>
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<strong><br /><span style="font-family: inherit;"></span></strong></div>
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<strong><span style="font-family: inherit;">It is my understanding that RSHO is NOT the same is Hemp Oil you might find in your local health food store. Hemp in the health food store is hemp oil pressed from hemp seeds and contains NO CBD.</span></strong> </div>
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span></div>
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Newcomers are often confused as to the difference between high CBD cannabis oil and high CBD hemp oil. They think we are talking about basically the same thing. Can you please explain the difference?</span></div>
<div class="yiv2409091219yui_3_13_0_ym1_1_1389360685520_32143 yui_3_13_0_ym1_1_1389452184974_2837 yui_3_13_0_ym1_7_1389452184974_21" style="background-color: transparent; color: black; font-size: 19px; font-style: normal;">
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<strong>Penny:</strong></div>
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<strong><br /></strong></div>
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<div class="yiv2409091219yui_3_13_0_ym1_1_1389360685520_32143 yui_3_13_0_ym1_1_1389452184974_2837 yui_3_13_0_ym1_7_1389452184974_21" id="yiv2409091219yui_3_13_0_ym1_7_1389356630914_10" style="background-color: transparent; color: black; font-size: 19px; font-style: normal;">
<strong>High CBD Cannabis and High CBD Hemp Oil are not the same in that the Cannabis Oil comes from the Marijuana plant and Hemp Oil comes from the Industrial Hemp Plant, a "cousin" plant to Marijuana. Similar but not the same. Just as some find relief with Charlotte's Web and some do not the same applies to RSHO. If RSHO is not successful for you it does not mean that Charlotte's Web will not be and vise versa. Also, if you are finding RSHO successful would you find more success from Charlotte's Web? I don't know? In some ways Charlotte's Web and RSHO are very similar and both considered <em>hemp</em> from a ratio standpoint. What makes something hemp: 1) coming from the hemp plant itself and 2) the ratio of CBD to THC. There is a lot of confusion in the world of RSHO and medical marijuana because of the interchangeable terminology. </strong></div>
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Harper's CBD Journey on Penny Howard's website Hope 4 Harper:<br />
<br />
<br />
<a href="http://www.hope4harper.com/before-and-after-six-weeks-of-high-cbd-industrial-hemp/">Before and After Six Weeks on High CBD Industrial Hemp</a><br />
<br />
<br />
<a href="http://www.hope4harper.com/2-months-on-industrial-hemp-cbd/">Two Months on Industrial Hemp CBD</a><br />
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Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com245tag:blogger.com,1999:blog-7016719073470800779.post-996042157657185812014-01-03T13:21:00.001-08:002014-01-07T03:24:40.170-08:00Autism/CBD Oil Success Stories: Joshua and Nick<img alt="" aria-busy="false" aria-describedby="fbPhotosSnowliftCaption" class="spotlight" height="320" src="https://scontent-a-iad.xx.fbcdn.net/hphotos-prn2/1453504_10152159019839283_1212873590_n.jpg" width="318" /><br />
<br />
Here I interview Gabby from California. Her boys, Joshua and Nick, have autism without epilepsy. They are thriving on CBD Oil (not Charlotte's Web in this case).<br />
<br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne: </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">In which state do you live?</span> <br />
<br />
<strong>Gabby: </strong><br />
<strong></strong><br />
<strong>CALIFORNIA</strong><br />
<br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Do both of your sons take CBD oil or just one? Which brand?</span> <br />
<br />
<strong>Gabby:</strong><br />
<strong></strong><br />
<strong>BOTH. Our CBD is made locally for us, no brand - we test every single batch.</strong> <br />
<br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne: </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">How do you test the batches? </span><br />
<br />
<strong>Gabby:</strong><br />
<strong></strong><br />
<strong>The batches are lab tested.</strong><br />
<br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne: </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">How does physician involvement work in California? I'm more familiar with how it </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">is done in Colorado at this point.</span><br />
<br />
<strong>Gabby:</strong><br />
<strong></strong><br />
<strong>The physician will ask for symptoms to treat: insomnia, anxiety, appetite, pain, aggressiveness, etc. </strong><strong>Then he will prescribe CBD and in some cases THC. He issues a prescription and you are left to find the oils or resins at the dispensaries. He recommended I talk to other parents to figure out brands and doses. And, with minors he requires to see the kid every three months to renew the prescription. All appointments must be paid in advance: close to $600 dollars.</strong><br />
<br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Have you seen any improvements in your sons' conditions? If so, what </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">specifically?</span><br />
<br />
<strong>Gabby:</strong><br />
<strong></strong><br />
<strong>Both started out as very severely autistic kids. Joshua is high functioning now and Nick is on his way.</strong><br />
<strong></strong><br />
<strong><span style="color: #990000; font-size: x-large;">NICK: 8 Years Old</span></strong><br />
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<img alt=" photo Joshua.jpg" data-link="id{:placeHolderId}" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/Joshua.jpg" id="placeHolder_2" style="height: 209px; width: 206px;" /><br />
<br />
<br />
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<strong>He has improved remarkably. My son was non-verbal and he started talking, pointing to things, naming all he sees, singing songs, counting in English and Spanish. Sensory issues are almost gone and fine motor is improved. He sleeps better, asks verbally for bath, food, toilet, etc. </strong><strong>He looks at his peers and wants to imitate them. He would avoid being touched and now asks for hugs. He also now keeps his clothes on, takes pictures and draws, loves music, sings, and dances. And he lets doctors and nurses take vitals. That's new. He would scream and run away before. A different kid!</strong><br />
<strong></strong><br />
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<strong>Oh and Nick is starting to answer yes and no questions. This started today. I'm telling you it's like Christmas morning every day. Can't wait to see what new thing cannabis is going to do for us! </strong></div>
<br />
<strong>Nick has been taking CBD and THC for three months.</strong><br />
<strong></strong><br />
<strong>I have not talked to many other parents on cannabis, but I have talked to many on stem cells. SAME RESULTS! But not as invasive or costly!</strong><br />
<br />
<span style="color: #990000; font-size: x-large;">JOSHUA: 10 Years Old</span><br />
<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/nick.jpg.html" target="_blank"><img alt=" photo nick.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/nick.jpg" /></a>
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<a data-dimensions="640,912" data-disablepaging="1" data-endpoint="/ajax/mercury/attachments/photo/view/?uri=https%3A%2F%2Fscontent-b-iad.xx.fbcdn.net%2Fhphotos-prn2%2Fv%2F1508261_10152153697112259_1283765386_n.jpg%3Foh%3D3e290dacb5b0683cb29b5ab2ee2c1019%26oe%3D52C80653&fbid=10152153697112259&message=mid.1388456177893%3Add7b03b3e0c8982b82&pageid=643096525724262&hash=AQCH55sWDatM9O36" data-fbid="10152153697112259" data-onclick="[["MessagesViewer","bootstrapWithElem"]]" href="https://scontent-b-iad.xx.fbcdn.net/hphotos-prn2/v/1508261_10152153697112259_1283765386_n.jpg?oh=3e290dacb5b0683cb29b5ab2ee2c1019&oe=52C80653" target="_blank"><br /></a><br />
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<strong>My other son is also autistic and was already talking, but now he's talking better! He is asking for new food items. He would self restrict his diet. This morning he asked for scrabbled eggs! WHAAAAT! That is new.</strong></div>
<strong></strong><br />
<strong>Joshua has been taking CBD and THC only a few weeks.</strong><br />
<strong></strong><br />
<strong>Look, here they are playing together!</strong><br />
<br />
<img alt=" photo joshuanickplaying.jpg" data-link="id{:placeHolderId}" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/joshuanickplaying.jpg" id="placeHolder_0" style="height: 274px; width: 206px;" /><br />
<br />
<br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne: </span><br />
<div>
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"> </span></div>
<div>
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">This is truly remarkable, but not surprising since it is the same story I keep hearing again and again. </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">You mentioned that your kids also take a THC oil tincture. While epileptic kids just take CBD, I've heard time and time again that some autistic children also benefit from a THC tincture beyond the trace amounts in CBD oil. While that sounds knee-jerk-scary without more information, this has kept some children with severe autism out of institutions (</span><a href="http://cbdoil.blogspot.com/2013/11/an-autismcbd-oil-success-story-rebecca.html"><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">here</span></a><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">, </span><a href="http://www.kptv.com/story/20660400/medical-marijuana-used-to-manage-autism"><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">here</span></a><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">, and </span><a href="http://www.thedoctorstv.com/videolib/init/1137"><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">here</span></a><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">). Can you tell us about your boys' THC tinctures? What percentage of THC is in the tincture?</span><br />
<br />
<strong>Gabby:</strong><br />
<br />
<img alt=" photo tincture.jpg" data-link="id{:placeHolderId}" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/tincture.jpg" id="placeHolder_0" style="height: 206px; width: 354px;" /><br />
<br />
<strong>This is my source of THC. It is only a small small dose: no bigger than the tip of a pencil. I dose it at 6:00 pm to make them unwind from the day. Promotes relaxation, gets rid of the anxiety and helps achieve deep healing sleep.<br /><br /> Even epileptic kids can benefit if you do micro dosing 10 g. Of full cannabis oil + 10ml. of olive oil. 1 to 2 drops 2 to 3 times a day.</strong><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne: </span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">THC is an interesting factor with epilepsy because in high doses it can cause seizures but parents and doctors are finding tiny bits of it actually help the CBDs work better. When growers lower the amount of THC in high CBD cannabis plants to resemble those in hemp parents find the anticonvulsant properties do not work as well. It is a synergy of plant based components that I believe they will have a hard time duplicating when they start isolating CBDs to make pharmaceuticals.</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Is there anything you'd like our readers to know?</span><br />
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<strong>Gabby:</strong><br />
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<strong>From Wikipedia's article on neurogenesis: </strong><br />
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<strong>"Some studies have shown that the use of cannabinoids results in the growth of new nerve cells in the hippocampus from both embryonic and adult stem cells. In 2005 a clinical study of rats at the University of Saskatchewan showed regeneration of nerve cells in the hippocampus.[55] Studies have shown that a synthetic drug resembling THC, the main psychoactive ingredient in marijuana, provides some protection against brain inflammation, which might result in better memory at an older age. This is due to receptors in the system that can also influence the production of new neurons.[56] Nonetheless, a study directed at Rutgers University demonstrated how synchronization of action potentials in the hippocampus of rats was altered after THC administration. Lack of synchronization corresponded with impaired performance in a standard test of memory.[57] Recent studies indicate that a natural cannabinoid of cannabis, cannabidiol, increases adult neurogenesis while having no effect on learning. THC however impaired learning and had no effect on neurogenesis.[58] A greater CBD to THC ratio in hair analyses of cannabis users correlates with protection against gray matter reduction in the right hippocampus.[59] CBD has also been observed to attenuate the deficits in prose recall and visuo-spatial associative memory of those currently under the influence of cannabis,[60][61] implying neuroprotective effects against heavy THC exposure. Neurogenesis might play a role in its neuroprotective effects, but further research is required." </strong></div>
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Thank you so much, Gabby. Every autism parent who is brave enough to speak the truth of cannabis for sick kids sends out a ripple that reaches dozens more, then some of those do the same, and before we know it we will have created a tide that cannot be turned back.</span><br />
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<strong>Gabby:</strong><br />
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<strong> I refuse to hide because I am not doing anything wrong or bad. I am not ignorant nor doing this without having done exhaustive research and being backed up by a great doctor. And, I believe it's a sin to keep all this knowledge to my self and be worried about what people think.</strong><br />
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Links provided by Gabby for further reading:<br />
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<a href="http://www.examiner.com/article/scientists-meet-to-discuss-cannabinoids-and-stem-cells">Scientists Meet to Discuss Cannabinoids and Stem Cells</a><br />
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<a href="http://www.thenation.com/article/176910/marijuana-miracle-why-single-compound-cannabis-may-revolutionize-modern-medicine#">The Marijuana Miracle: Why a Single Compound in Cannabis May Revolutionize Modern Medicine - The Nation</a><br />
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<a href="http://en.m.wikipedia.org/wiki/Neurogenesis">Neurogenesis</a> - Wikipedia<br />
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Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com409tag:blogger.com,1999:blog-7016719073470800779.post-76976684045217101372013-12-07T16:35:00.003-08:002013-12-28T10:28:21.983-08:00Charlie Update: Kentucky's Own CBD Oil Refugee Thrives on Charlotte's Web<div style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;">
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<img alt="Health and Welfare Committees - Kentucky House and Senate, Majority Leader Greg Stumbo, Governor Steve Beshear: Sponsor a bill in 2013 to grant autistic and epileptic children legal access to cannabidiol oil (CBD oil)." src="https://d22r54gnmuhwmk.cloudfront.net/photos/1/yg/rp/iVYGrpMpmkeDXoM-556x313-noPad.jpg" title="Health and Welfare Committees - Kentucky House and Senate, Majority Leader Greg Stumbo, Governor Steve Beshear: Sponsor a bill in 2013 to grant autistic and epileptic children legal access to cannabidiol oil (CBD oil)." /><br />
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<a href="http://cbdoil.blogspot.com/2013/11/legalize-cbd-oil-in-ky-eric-crystal-and.html">I first introduced readers to Charlie one month ago</a> when the Byrd family arrived in Colorado. Though they were excited to start Charlie's journey with Charlotte's Web CBD oil, the family already longed to return home. Here Charlie's mother, Crystal, tells us what life in Colorado has been like so far and she shares Charlie's progress on the oil. Crystal is also co-administrator of the <a href="https://www.facebook.com/pages/CBD-Oil-for-Autism-Epilepsy-Kentucky/643096525724262?ref=hl">CBD Oil for Autism and Epilepsy - Kentucky Facebook page</a>. <br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne:</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">How long has your family been in Colorado so far?</span><br />
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<span style="font-size: large;"><strong>Crystal:</strong></span><br />
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<span style="font-size: large;"><strong>We've been here almost 6 weeks. Charlie's been taking the oil for over 4 of those weeks.</strong></span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne: </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">How was Charlie's initial adjustment to Charlotte's Web?</span><br />
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<span style="font-size: large;"><strong>Crystal:</strong></span><br />
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<span style="font-size: large;"><strong>Charlie has done well so far. His initial doses were smaller to allow us to titrate up slowly as needed. The oil is administered under his tongue three times daily. He doesn't even mind taking it. There have absolutely been NO side effects observed and we've actually been able to lower some of the other four anti-epileptic drugs he was on! </strong></span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne:</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">That is remarkable and certainly unheard of compared to some of the other medications our children take. Have his seizures reduced compared to before Charlotte's Web?</span><br />
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<span style="font-size: large;"><strong>Crystal:</strong></span><br />
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<strong><span style="font-size: large;">We have had several rounds of seizure free spells and are hoping to see more of that as we go up on Charlotte's Web. Seizure control can take months due to the delicate balance of his existing drugs interacting with the CBD oil. Charlie has slow waves between 3/4 that should be between 5/6 prior to CBD. </span></strong><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne:</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Have you noticed any developmental progress beyond seizure reduction?</span>
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<span style="font-size: large;"><strong>Crystal:</strong></span><br />
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<span style="font-size: large;"><strong>Changes in communication, alertness, eye contact, physically, fine motor and just all around improvement. He's beginning to problem solve and effectively use words in sentence form which he could never do prior to CBD. Charlie has always been extremely intelligent: able to memorize entire movies, knew his alphabet by 2 years of age, counting, shapes and hundreds of animals - but he couldn't apply any of it. It was in there but the sub clinical activity (slow brain waves on EEG) prohibited him from being able to use his understanding in conversation. Now he can at least pull thoughts out quickly enough to communicate that he relates to conversations and then respond.</strong></span><br />
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<span style="font-size: large;"><strong>Charlie is also jumping and climbing a lot easier due to what seems is an increase in interest to use his body parts to propel himself. It's amazing as a parent to see things that no one else would notice aside from his physical, speech, or occupational therapists. Charlie has really responded well to this treatment and we hope that more good is to come. </strong></span><br />
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<span style="font-size: large;"><strong>CBDs are anti-inflammatory and neuroprotective.
It would be nice if all epileptic or autistic children could try CBD. If not for seizure control then at least for the neuro-protective and anti-inflammatory properties.</strong></span><br />
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<span style="color: #0b5394; font-size: large;">Suzanne: </span><br />
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<span style="color: #0b5394; font-size: large;">It has been wonderful following Charlie's progress over the last month and getting to enjoy your reactions to it. Your sense of awe really comes through.</span><br />
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<span style="color: #0b5394; font-size: large;">Research shows that many with autism have brain inflammation and oxidative stress. Perhaps the anti-inflammatory and anti-oxidative properties of CBDs are playing a part in why autistic children who take the oil are responding so well?</span><br />
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<span style="color: #0b5394; font-size: large;">What has moving across the country from Kentucky to Colorado been like for your family? Will you stay there now that you know the oil is working or will you have to come home?</span><br />
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<span style="font-size: large;"><strong>Crystal: </strong></span><br />
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<span style="font-size: large;"><strong>Unfortunately, even though the oil is working we only have the financial resources to maintain one home. In Kentucky both of us were able to work with help from my in-laws and my parents to drop off and pick up Charlie from school. In Colorado only one of us can work so the other can be there for Charlie. The cost of living and home buying in Colorado is significantly higher than Kentucky. Buying a second home isn't an option so we are forced to rent at over 1,000 a month! This has been the hardest month of our family life. Charlie is stuck in a small apartment with no family, no friends, without his wonderful school support and our church. It goes on forever. This is a time to celebrate Charlie's new accomplishments and we can't even share them with those who know and love him except through Face Time or Facebook.</strong></span><br />
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<span style="font-size: large;"><strong>And I think it's crazy I can order high CBD oils from other countries and it's legal! But I can't get it right here in my own country where I know the oil is organic, tested, and safe? Where's the logic? This has to change for all our children. Kentucky deserves more and the only reason that this isn't legal is unfounded and just plain ignorant. Times are changing and we don't need to be the last state to adopt something that makes plain sense.</strong></span><br />
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<span style="color: #0b5394; font-size: large;">Suzanne:</span><br />
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<span style="color: #0b5394; font-size: large;">How does physician involvement work? Does a general practitioner prescribe and then a neurologist tracks progress? How do they know when it is time to increase the dose? And how do doctors know it is time to reduce other anticonvulsants?</span> <br />
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<span style="font-size: large;"><strong>Crystal:</strong></span><br />
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<span style="font-size: large;"><strong>In Colorado a pediatric patient must be seen by two recommending physicians to get a medical marijuana card. Once you have the approval of two physicians you submit an application to the state along with a $35.00 registration fee. The next step begins with finding a dispensary that has high CBD product for purchase. We are on the Charlotte's Web Realm Oil. It has the highest CBD I've seen. The oil is made by the Realm of Caring Foundation and each batch is tested by Cannalabs for CBD/THC levels before distributed. The cost for the oil is 5 cents per mg of CBD. Currently we are up to 70 mg a day CBD, so roughly $3.50 a day. There are several neurologists here that follow MMJ patients with dosing, lowering other medications, scheduling blood work, and arranging EEGs. It's quite amazing the support you'll find here. This could easily be replicated in any other state if the correct barriers are removed that are preventing research of this plant. </strong></span><br />
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<span style="font-size: large;"><strong>Currently, there is an orphan drug of pure CBD that has gained FDA approval for trails in the United States. It is called Epidiolex(c) produced by GW pharmaceuticals but the trials are small and what I can find are already full.</strong></span><br />
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<span style="color: #0b5394; font-size: large;">Suzanne:</span><br />
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<span style="color: #0b5394; font-size: large;">That sounds like a similar process to how we already titrate our kids up and down on anticonvulsant medications.</span><br />
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<span style="color: #0b5394; font-size: large;">I am not opposed to pharmaceutical companies making cannabis extract medications, especially since that could eventually make them more accessible and reduce costs. However, I know how these things typically go. They don't do whole plant medicine. They isolate compounds from the plants in labs and turn them into synthetic drugs. But, whole plant medicine works by entourage effect, where various compounds operate in synergy to produce the desired medicinal effects. Isolate the compounds and it doesn't work as well, with side effects to boot.</span><br />
<span style="color: #0b5394; font-size: large;"></span><br />
<span style="color: #0b5394; font-size: large;">There are already cannabis based pharmaceuticals on the market like Marinol. My father took it for cancer related appetite loss. I don't hear anyone claiming Marinol as a magic bullet for pediatric epilepsy like Charlotte's Web Cannabis Oil. Maybe this Epidiolex will be different. I hope so.</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">We will update you again on Charlie's progress once he hits full dose.</span><br />
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<span style="font-family: "Trebuchet MS", sans-serif; font-size: x-large;"><strong>Help Us Access CBD oil in Kentucky</strong></span><br />
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<strong><span style="font-family: Trebuchet MS;">1. Kentucky residents: call the legislative hot line at 1-800-372-7181, give your zip code, then tell the operator to ask your senator and representative to support legislation to legalize CBD for autism, epilepsy, and other conditions it is known to help. </span></strong><br />
<strong><span style="font-family: Trebuchet MS;"></span></strong><br />
<strong><span style="font-family: Trebuchet MS;">2. Sign our petition <a href="https://www.change.org/petitions/health-and-welfare-committees-kentucky-house-and-senate-majority-leader-greg-stumbo-governor-steve-beshear-sponsor-a-bill-in-2013-to-grant-autistic-and-epileptic-children-legal-access-to-cannabidiol-oil-cbd-oil">here</a>.</span></strong><br />
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<strong><span style="font-family: Trebuchet MS;">3. Send your email address to Suzanne at <a href="mailto:cbdoilky@gmail.com">cbdoilky@gmail.com</a>. Action alerts will occasionally be sent.</span></strong>Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com10tag:blogger.com,1999:blog-7016719073470800779.post-7748663146772123742013-12-06T04:38:00.000-08:002013-12-24T04:00:33.869-08:00Allow CBD Oil in Tennessee for Mille<img alt=" photo mattison1.jpg" data-link="src{:fullsizeUrl} width{:rsWidth} height{:rsHeight}" height="400" id="fullsizeMedia" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/mattison1.jpg" width="300" /><br />
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Here I talk with Nicole Mattison of Tennessee. She is mother of Millie, who was diagnosed with infantile spasms. Millie is on the waiting list in Colorado for Charlotte's Web until the family is able to move. In the meantime, Nicole hopes to raise awareness about medical cannabis where she lives now. (For a glossary of acronyms used in this interview see the sidebar of this page.)<br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne: </span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Tell us about Millie.</span><br />
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<span style="font-size: large;"><strong>Nicole: </strong></span><br />
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<span style="font-size: large;"><strong>She was born at term but had microcephaly and trouble nursing. At a month she still had a poor suck/swallow, was refluxing all the time and had tracheomalacia, which was exacerbated by the reflux, so she had lost a lot of weight. They did their first EEG then and things looked normal. They decided at two months to do a nissen procedure to stop the reflux and to insert a g-tube to feed her. Two weeks after the surgery we noticed the first spasms.</strong></span><br />
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<span style="font-size: large;"><strong>When she went in at three months old, they confirmed infantile spasms. They started the Ketogenic Diet in June of 2012, as well as Trileptal, Topomax and Keppra. We kept a notebook on the frequency of spasms and by December they were still at a high frequency, so they took her off the Trileptal and switched to Sabril. Neuro decided to bypass ACTH as she is not immunized, I did not have an issue with this as they felt Sabril would work.</strong></span><br />
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<span style="font-size: large;"><strong>We decided to try other neurologists as ours in Tennessee had no idea what was going on with Millie since all genetic testing came back normal. They called her a puzzle. She had trouble on the manufactured Ketogenic Diet. She wasn't gaining weight or growing, had terrible diarrhea and spit up (which they attributed to her neurological status).</strong></span><br />
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<span style="font-size: large;"><strong>One of our alternative therapist recommended a natural form of the diet. I asked our nutritionist about it and she said they have a few kids on it (which I could not believe wasn't the first line they would recommend!!), so we switched. At this time we had pushed the ratio up to a 4.5:1. When we switched to the natural diet an amazing thing happened - she started GROWING!! and gained LOTS of weight! Her body just hadn't had nutrient rich food to feed it!!</strong></span><br />
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<span style="font-size: large;"><strong>Another thing happened about a month after the switch. Millie's electrolytes started getting out-of- whack. Over the course of a few days she started swelling and wheezing. We assumed she was having an allergic reaction to something so we went to the ER. They did some blood work and found her Sodium was at 108, which is critically low! It took some time to stabilize her. The Pediatric Intensive Care Unit doctor said he had never seen a sodium level that low and we should be thankful we brought her in when we did.</strong></span><br />
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<span style="font-size: large;"><strong>June through August consisted of four PICU stays and one General Floor stay. After being sent home from the sodium incident, we wound up back the next day because something was just off. Her heart rate was extremely high. However, the ER docs basically told us: "Look, she has neurological issues - just accept it.", and then he discharged us. But I KNEW something was off and pressed for an overnight observation. We found out she had a staph infection from the pic line. </strong></span><br />
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<span style="font-size: large;"><strong>They had her on several supplements: sodium, magnesium, calcium, potassium and iron. They urged us to switch back to the manufactured diet as it was "fortified with plenty of nutrients she desperately needed", but I knew this just didn't feel right. I knew the real food she was getting was good for her, as was evident by her growth. There was something else going on.</strong></span><br />
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<span style="font-size: large;"><strong>The supplement didn't have the impact on her electrolytes they had hoped for and she started becoming anemic. She needed nine blood transfusions over the course of the three months, continuously spiraling into metabolic acidosis. They started reverting back to her neurological condition and speculating her brain just couldn't regulate her kidney function. Her creatinine levels were high (I knew deep down that there was something else attributing to these occurrences. I always had.). We stopped the Topamax at this time at my request. The doctors thought it might be causing the acidosis and wanted to start her an another medication to help. It made NO sense to me to add another medication when we could STOP this one!</strong></span><br />
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<span style="font-size: large;"><strong>All summer she stayed swollen, I think we were at home for a week and a half at the most. In August we went to the Emergency Room for blood work, as recommended by our pediatrician after a follow up from our hospital release. It was a Friday. Her blood work was off, but they felt it could wait over the weekend, as we had a hematology follow up scheduled Monday morning. We knew we would be admitted that Monday. And we were.</strong></span><br />
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<span style="font-size: large;"><strong>There was blood in her stomach. She had not peed in over twelve hours. Her blood work showed she was dehydrated, though she was as swollen as we had ever seen. Once we were admitted in our room (on the general floor) things went from bad to worse. She coded; stopped breathing. It was the most horrifying scene: her laying there pale and so bloated, the team just flopping her around like a toy trying to get some response. They needed to intubate her in order to get a central line in and get blood work, but she was dry as a bone and not giving blood. Once they did that her PH level came back as <em>incalculable</em>. This was the first time several in the Pediatric Intensive Care Unit team had seen this. Her kidneys had shut down and she was in severe metabolic acidosis. </strong></span><br />
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<span style="font-size: large;"><strong>The next few days were a blur. The goal for her blood pressure was thirty-five! Thankfully it went up daily and she continuously improved!</strong></span><br />
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<span style="font-size: large;"><strong>ALL that to say that as of today, we not on any of the supplements and her kidney function has returned to normal! It was very frustrating to me that they continually wrote off her issues as "neurological manifestations", when ALL they had to do was set that aside and look at her as a NORMALLY FUNCTIONING infant! Problem solved!</strong></span><br />
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<span style="font-size: large;"><strong>Back to the spasms: she is on 2,000mg/day of Sabril (enough to treat an adult). We just increased it as there has been no improvement in her EEG, however the Sabril has <em>decreased</em> her alertness and ability to interact and progress. She was spasm/seizure free for about nine months, but they recently came back right before October.</strong></span><br />
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<span style="font-size: large;"><strong>She is doing a GREAT job at physical therapy, holding up her head and sitting for a bit. She just started feeding therapy (all things the docs said she would never do).</strong></span><br />
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<span style="font-size: large;"><strong>My husband watched Dr. Sanjay Gupta's CNN documentary on medical cannabis this summer and mentioned it and I thought, "DUH, pure nature!". We asked one of the doctors at the hospital we had built a rapport with and he was all for it, so we started looking into it. We mentioned it to our neurologist in Cincinnati last week and she said its worth a try.</strong></span><br />
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<span style="font-size: large;"><strong>Though her spasms/seizures may not be life threatening at this time, I believe the side effects of the chosen treatment of infantile spasms/epilepsy nearly killed her and that should not happen when there are other possibilities. </strong></span><br />
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<span style="background-color: white; color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne:</span><br />
<span style="background-color: white; color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"></span><br />
<span style="background-color: white; color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Nicole, I am so sorry. I cannot fathom the trauma of all that. </span><br />
<span style="background-color: white; color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"></span><br />
<span style="background-color: white; color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">We've had to juggle the problem of epilepsy medication side effects, too. Alex was on Prednisone for two years. We all know what that is and why long term use is dangerous. He gained too much weight on Depakote, so we switched to Topamax. On Topamax he has less appetite and is at risk for kidney stones. Plus, Topamax has that acidosis risk you mentioned and Alex has two heterozygous genetic mutations that put him at greater risk for acidosis anyhow. It is like being on a roller coaster that you can't get off. </span><br />
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<span style="background-color: white; color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Even though you plan a move to Colorado so Millie can access the oil you have been quite busy laying groundwork at home in Tennessee. Tell us about that.</span><br />
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<span style="font-size: large;"><strong>Nicole:</strong></span><br />
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<span class="null"><span style="font-size: large;"><strong>We are working with a few organizations in Tennessee. Education is key. There are still a lot of citizens that don't assimilate the medical benefits of a cannabis because all they have heard for years is the "war on drugs" aspect of marijuana. Therefore, we are working closely with NORML TN as well as a non profit they have created, Tennesseans for Compassionate Care. Both are working with a lobbyist to make sure we are being heard on Capitol Hill. In conjunction, we've planned a few awareness events. We are planning an event in which we take all the names of those we have lost and those currently struggling with conditions in which MMJ would benefit and will be making posters to put up in Legislative Plaza. We are looking into a mainstream advertising campaign in local papers and tv ads. We are also trying to gather a panel of experts to do a public forum, invite the public to listen to the panel and bring their questions. Again, all of these are to raise awareness and educated on the proper usage of MMJ. <br />
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We are also trying to get the word out in any way possible. We did an interview with our local Fox affiliate after the NORML TN monthly meeting and hoping that gets on air this evening so we can share it!<br />
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I think that, like Millie, there are other children that mainstream medical professionals just aren't sure how to treat and these children are getting tossed aside because there are not enough "resources" to invest into their care. That being said we've always gone a more holistic route for all of our care needs so I firmly believe that our past experiences are what has led us to investigate MMJ.</strong></span></span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne:<br />
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It really is a public relations campaign to change entrenched biases against this plant and its uses. Thank you for sharing your family's suffering. It is important to get these stories out and I admire your bravery in doing so. Best of luck to you.</span></span><br />
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<span class="null" style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"><img alt=" photo mattison2.jpg" data-link="src{:fullsizeUrl} width{:rsWidth} height{:rsHeight}" height="400" id="fullsizeMedia" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/mattison2.jpg" width="300" /></span><br />
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<span style="color: black; font-family: Arial; font-size: x-large;"><strong>How To Help The Mattisons</strong></span><br />
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<span style="color: #0b5394; font-family: Arial; font-size: large;"><span style="color: black; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">The Mattisons have set up a fundraising page on <a href="http://www.youcaring.com/medical-fundraiser/moving-millie-/112308">You Caring</a>. Money raised will cover costs associated with their move to Colorado. In Colorado Millie will be prescribed the Charlotte's Web CBD Oil she cannot get at home in Tennessee.</span> </span><br />
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<span style="font-family: "Trebuchet MS", sans-serif; font-size: x-large;"><strong>How To Help In Tennessee</strong></span><br />
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1. <a href="http://www.capitol.tn.gov/legislators/">Contact you legislator and senator</a>. Enter your zip code and this page will direct you to them. Ask them to support medical cannabis.<br />
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2. <a href="http://tenncc.org/">Contact Tennesseans for Compassionate Care</a> and ask how you can help.<br />
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<br />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com47tag:blogger.com,1999:blog-7016719073470800779.post-32281848675893164702013-12-03T03:36:00.000-08:002013-12-03T03:36:24.685-08:00Dr. Stephen Davis, PhD on Charlotte's Web Cannibidiol Oil<br />
<img alt="" class="_5pcd img" src="https://fbexternal-a.akamaihd.net/safe_image.php?d=AQAH_Ku4dTqTNpZ7&w=398&h=208&url=http%3A%2F%2Fimages.teespring.com%2Fuploads%2F2013%2F11%2F21%2F16%2F171634%2FshirtFront.jpg%3Fv%3D2013-11-28-08-14&cfs=1&upscale" /><br />
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The following is an interview with Dr. Stephen Davis, PhD. Dr. Davis earned his Doctorate in biochemistry from The University of Louisville in 1993. He did two years of post-doctoral training at the National Institute of Drug Abuse in Baltimore studying the interactions of cocaine with brain receptor d. After that Dr. Davis returned to Kentucky to work on identifying genetic components to human diseases.<br />
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Dr. Davis served nearly thirty-two years in the National Guard of the United States, attaining the rank of Lieutenant Colonel before retiring in February of 2013. He served multiple tours in Washington D.C., in support of the National Guard Civil Support Teams (CST) program. Dr. Davis was the CST program manager before returning to Kentucky to command the 41st Civil Support Team. In D.C. Dr. Davis worked extensively on policy matters including executive and legislative changes to improve the CST program's support to the American people. <br />
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As an enlisted Airman he was a photographic technician. Over the years Dr. Davis went on to other assignments including Afghanistan, Detailed Inspector General, Regimental Adjutant, National Guard Bureau Science Officer, Chemical Officer, and Company Commander. He was awarded the Bronze Star and three Meritorious Service Medals. <br />
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Stephen is also uncle to my son, Alexander, who has Regressive Autism and epilepsy.<br />
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**Note: the terms Charlotte's Web and Alepsia will be used interchangeably in this interview. They are both names for a specific strain of high CBD/low THC cannibdiol oil. For a glossary of terms and acronyms used in this interview please see the right sidebar of this page.<br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">How did you become interested in Alepsia (Charlotte's Web Cannibidiol Oil)?</span> <br />
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<span style="font-size: large;"><strong>Dr. Davis:</strong></span><br />
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<span style="font-size: large;"><strong>My initial interest was not in Alepsia specifically, but in affecting behavior </strong></span><span style="font-size: large;"><strong>through pharmaceutical intervention. My inspiration came as a teenager in </strong></span><span style="font-size: large;"><strong>observing that alcoholism was prevalent in certain families. I thought that </strong></span><span style="font-size: large;"><strong>there was perhaps a genetic component which could be addressed with </strong></span><br />
<span style="font-size: large;"><strong>pharmaceutical intervention like any other disease, so I was inspired to get a </strong></span><span style="font-size: large;"><strong>doctorate in biochemistry so I could develop the capacity to help. I first </strong></span><span style="font-size: large;"><strong>became aware specifically of Alepsia when I saw your testimony to the Louisville </strong></span><br />
<span style="font-size: large;"><strong>Metro Government on Facebook. My training and research provided a context for </strong></span><span style="font-size: large;"><strong>me to look more into Alepsia, which I am convinced needs to be rigorously </strong></span><span style="font-size: large;"><strong>studied.</strong></span> <br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">What have you read concerning Alepsia that convinced you it warrants further investigation and for what conditions?</span><br />
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<span style="font-size: large;"><strong>Dr. Davis:</strong></span><br />
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<span style="font-size: large;"><strong>Two things. First, all the reports of severely epileptic children who have taken </strong></span><span style="font-size: large;"><strong>Alepsia and experienced miraculous relief of nearly all their seizures. As a </strong></span><span style="font-size: large;"><strong>person, you can't help but be curious that a plant extract could be so powerful. </strong></span><br />
<span style="font-size: large;"><strong>If it is, it would be unconscionably cruel to withhold Alepsia from everyone who </strong></span><span style="font-size: large;"><strong>would benefit. We can only learn who will benefit and what is the specific </strong></span><span style="font-size: large;"><strong>therapeutic component, or components, through rigorous scientific research. </strong></span><br />
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<span style="font-size: large;"><strong>That alone would be enough, but there are also distinguished scientists who </strong></span><span style="font-size: large;"><strong>believe in Alepsia. Physician-scientists in academic settings. Society, </strong></span><span style="font-size: large;"><strong>unfortunately or not, is all too ready to relate children's recovery to the </strong></span><span style="font-size: large;"><strong>parents' hope rather than the therapeutic agent. We don't so easily dismiss </strong></span><br />
<span style="font-size: large;"><strong>trained, experienced, knowledgeable professionals. </strong></span><br />
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<span style="font-size: large;"><strong>As for what Alepsia is suitable to treat, only the research will tell. The </strong></span><span style="font-size: large;"><strong>obvious place to start is epileptic seizures. With the available information it </strong></span><span style="font-size: large;"><strong>is reasonable to study Alepsia's effect on autism, Traumatic Brain Injury, Post Traumatic Stress Disorder, and perhaps other </strong></span><span style="font-size: large;"><strong>late onset brain disorders. Alepsia could potentially help a whole lot of </strong></span><span style="font-size: large;"><strong>people from children to veterans. There is no doubt we need to answer this </strong></span><span style="font-size: large;"><strong>question.</strong></span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">In an ideal world how would you see the future of Alepsia unfold in </span><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Kentucky in terms of both scientific research and the ability for epileptic </span><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">children to access the oil?</span><br />
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<span style="font-size: large;"><strong>Dr. Davis:</strong></span><br />
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<span style="font-size: large;"><strong>Not to be flip, but science is about the real, not ideal. While ideals do </strong></span><span style="font-size: large;"><strong>inspire us, the real can be measured, assessed, improved, and prescribed. The </strong></span><span style="font-size: large;"><strong>starting place is to establish Alepsia's safety. Once that is done, the next </strong></span><span style="font-size: large;"><strong>step is defining its therapeutic range and delivery methods. Then standard </strong></span><br />
<span style="font-size: large;"><strong>clinical research moves to large scale studies to validate effectiveness. On the </strong></span><span style="font-size: large;"><strong>positive side, this process ensures safety and efficacy. Unfortunately, for new </strong></span><span style="font-size: large;"><strong>candidate drugs, the process is excruciatingly slow for families looking for </strong></span><br />
<span style="font-size: large;"><strong>relief as wide availability can be months or years away. Alepsia, however, is </strong></span><span style="font-size: large;"><strong>not new. The timeline can and should be shortened based on currently available </strong></span><span style="font-size: large;"><strong>information. Most importantly, there have been significant numbers of epileptic </strong></span><br />
<span style="font-size: large;"><strong>children taking Alepsia with dramatic relief of seizures. Secondly, Alepsia's </strong></span><span style="font-size: large;"><strong>ingredients are well characterized, and there is no evidence of unacceptable </strong></span><span style="font-size: large;"><strong>side effects. My conclusion is that legal and social barriers to the </strong></span><span style="font-size: large;"><strong>availability and study of Alepsia must be removed.</strong></span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">There is some discussion regarding the classification for THC levels in </span><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">Kentucky's hemp law. Any cannabis sativa containing under 0.3% THC is now </span><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">considered a hemp allowable for research purposes. Some of these high CBD strains might fall into that category, or if they do not now they can be bred that way. Therefore, it could be legal </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">for certain strains to be grown in Kentucky. How might such research best </span><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;">be designed, say, for epilepsy and/or autism?</span> <br />
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<strong><span style="font-size: large;">Dr. Davis:</span></strong><br />
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<strong><span style="font-size: large;">Perhaps I got ahead of the questions, but I described the research concept </span></strong><strong><span style="font-size: large;">in some depth in the previous question. I will decline to address legal </span></strong><strong><span style="font-size: large;">strategies for producing or obtaining Alepsia in that I am not a lawyer. What I </span></strong><strong><span style="font-size: large;">do know is that Alepsia contains THC levels so low that the Alepsia does not </span></strong><br />
<strong><span style="font-size: large;">result in any effect sought by recreational drug users. I also know that </span></strong><strong><span style="font-size: large;">cocaine, a drug which I have studied and published papers in scientific </span></strong><strong><span style="font-size: large;">journals, is a widely abused recreational drug. No component of Alepsia is know </span></strong><strong><span style="font-size: large;">to be addictive, and no person has ever been documented to have died from using </span></strong><br />
<strong><span style="font-size: large;">any component of Alepsia. Cocaine on the other hand is clearly addictive, </span></strong><strong><span style="font-size: large;">clearly dominates the lives of its addicts, and clearly kills people who abuse </span></strong><strong><span style="font-size: large;">it, in some cases the first time they use it. But cocaine does have a legal </span></strong><strong><span style="font-size: large;">medical use where Alepsia still has significant legal barriers in most states. </span></strong><strong><span style="font-size: large;">As a voter and taxpayer, it is easy to emphatically say that Alepsia's legal </span></strong><strong><span style="font-size: large;">barriers must be eliminated.</span></strong><br />
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Dr. Davis currently serves as proprietor and sole member of small town, Big Ideas, LLC (stBI). stBI is dedicated to helping others achieve their full potential through mentorship, training, and education. Dr. Davis is also Chair of the Kentucky chapter of USA Cares, training officer for the Oldham County Hazardous Materials Team, and is co-owner of Davis-Harbridge Homes. He lives in Oldham County, Kentucky with his wife of thirty-three years. They have two adult children and three grandchildren.<br />
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<br />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com29tag:blogger.com,1999:blog-7016719073470800779.post-48354546575443026542013-11-30T05:17:00.003-08:002013-11-30T05:18:14.361-08:00Campaign to Access CDO Oil in Kentucky for Autism and Epilepsy: Update 11/30/13<img alt="" aria-busy="false" aria-describedby="fbPhotosSnowliftCaption" class="spotlight" height="320" src="https://scontent-b-ord.xx.fbcdn.net/hphotos-prn2/1458507_10152074884314283_2068306483_n.jpg" width="318" /><br />
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<span style="font-family: Arial, Helvetica, sans-serif; font-size: x-large;"><u>OUR STRATEGY AS OF NOW</u></span><br />
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<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"><em>Progress Toward A CBD Oil Bill</em></span><br />
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Myself and <a href="https://www.facebook.com/groups/1374564542790177/">The Byrds</a> have been hard at work contacting representatives and senators in both chambers of the Kentucky legislature. We hope to gain sponsors for a bill allowing Cannibidiol Oil in Kentucky for autism and epilepsy. Some have been open and receptive, promising to look into the issue, but as of today still no sponsor. We need a lot of help with calls to the legislature. I will post specific information about that on our Facebook page over the next few days. We will continue fighting until the last possible moment for a CBD oil bill this session. Our children deserve no less.<br />
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Special thanks to the legions of Byrd family supporters who seem to drop everything at a moment's notice to call Frankfort whenever asked. Without them we wouldn't be on any politician's radar right now. Period.<br />
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<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"><em>The Hemp Angle</em></span><br />
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Our state's hemp law classifies any cannabis sativa plant under 0.3 THC as a hemp that can be grown for research purposes. Some of these CBD oils meet that benchmark. So, we are wondering if the law already makes access to CBD oil possible here because at this point it is fundamentally a hemp. Would we just need a joint resolution somewhere allowing for extracts? We intend to find out.<br />
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<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"><em>An Autism and Epilepsy CBD Oil Study in Kentucky?</em></span><br />
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We are also working with another group to ask the Kentucky legislature to allow one of our local universities to study CBD oil for autism and epilepsy. We are not seeking funding, only for them to allow a study to happen on Kentucky soil. That way if an opportunity arises the permission is already granted. I will update progress on that front as more information becomes available.<br />
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<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"><em>The Medical Cannabis Bill</em></span><br />
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We also support the broader medical cannabis bill that will be introduced over the next few weeks. We see this as not only an opportunity to provide our children with safer options, but as a means for Kentuckians ill with other conditions to get what they need. <a href="https://www.facebook.com/KY4MM">There will be hearings for the issue in Frankfort on December 18th, 2013</a>. We need as many parents there representing their sick children as possible. <br />
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<span style="font-family: "Trebuchet MS", sans-serif; font-size: large;">Commentary from Suzanne</span><br />
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I don't want to be doing this. I never cared about cannabis. I rarely even drink caffeine or alcohol. I would rather be sitting on the sidelines watching my kid play sports or planning a family vacation. I certainly wouldn't be working my guts out for this if I did not believe it could be my son's best chance at a stable future. At first that was my only motive. Then I saw <a href="http://www.cnn.com/2013/08/07/health/charlotte-child-medical-marijuana/">children with intractable epileptic conditions leaving wheel chairs behind because of this oil</a>. I read about <a href="http://www.usnews.com/opinion/articles/2013/01/07/medical-marijuana-is-safe-for-children">babies with brain tumors that are shrinking because of it</a>. No, this is not just about what's good for mine anymore. It never will be. Even if my son woke up epileptiform free tomorrow I'm in it now.<br />
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Yet, sometimes I wonder if I'm crazy for publically putting my name to this issue since the bias against this plant is so strong. What happens when I apply for a job next time and they Google my name? Will they see me as a mother trying to help sick kids or will they just assume I must be some pothead and chuck the application in the trash? I'm taking a risk, to be sure, but I'm not the only one. People from all walks of life are speaking out on the therapeutic benefits of this plant: doctors, lawyers, mothers, fathers, police officers. Our voices form a chorus that must be heard.<br />
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Yours in this Work,<br />
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Suzanne De Gregorio<br />
CBD Oil for Autism and Epilepsy <br />
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<em>"Would you teach your children to tell the truth<br />Would you take the high road if you could choose<br />Do you believe you're a victim of a great compromise<br />'Cause I believe you could change your mind and change our lives."</em><br />
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-John Mellencamp, Your Life is Now<br />
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<br />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com24tag:blogger.com,1999:blog-7016719073470800779.post-34808493686145492002013-11-22T14:51:00.001-08:002013-11-28T04:04:13.190-08:00An Epilepsy Mother's Loss: Jan McDaniel Speaks<img alt="" aria-busy="false" aria-describedby="fbPhotosSnowliftCaption" class="spotlight" height="250" src="https://scontent-b-iad.xx.fbcdn.net/hphotos-ash3/1239839_663028340383111_1608677212_n.png" style="height: 250px; width: 250px;" width="250" /><br />
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This is an interview with Jan McDaniel, who lost her daughter Carrie to a seizure. When I first met Jan on my CBD oil Facebook page she spoke of her loss, while ardently advocating for the right of people to access CBD oil for epilepsy. It moved me that this woman, who has lived every mother's worst nightmare, spends her time trying to prevent the same from happening to others. Here Jan bravely recounts what happened to Carrie and shares her vision for children currently living with epilepsy. <br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Tell us about your connection to epilepsy.</span><br />
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<strong>Jan:</strong><br />
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<strong>I was so clueless. At age three my daughter had her first seizure. One minute she was pushing her baby stroller and the next she was on the floor having a grand mal seizure. All I could do was call 911. I was told they would go away. She spiked a fever. Little did I know that at age five she would have another seizure, on her birthday.</strong><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">How did those seizures progress as she got older?</span><br />
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<strong>Jan: </strong><br />
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<strong>They didn't at first, not unless she had any I didn't see. When she turned twelve she had her next event. This happened at church. She had another one that year, but she and her friends kept it quiet for a long time. At age fifteen she had one at a friend's home. It was dark. The EMS could not find the home and she was turning blue. By the time she arrived at the hospital her midriff area was gray. They brought her back from the brink of death. This episode caused brain damage. After that they became more serious and more frequent.</strong><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I am so sorry, Jan. A lot of people don't realize that seizures can cause brain damage, even in older children. Can you tell us what happened from there?</span><br />
<br />
<strong>Jan: </strong><br />
<strong></strong><br />
<strong>We got her home she could not remember the day of the week. She would ask over and over, "what day is today?". This went on for months. She could not remember where her clothes went. She had crying spells and was frustrated. She was reading many books a week and went down to not reading at all. </strong><br />
<strong></strong><br />
<strong>The seizures became more often and lasted longer each time. We had many ER visits. After a while her brain did some healing. She put up her clothes and could remember what day it was. We did tests and the doctor said the causes of her seizures were unknown. After constant ER visits her doctor gave us a narcotic to use at home and another to use if we went out and she seized. </strong><br />
<strong></strong><br />
<strong>I was afraid for her to go to her dad's. He lived out of Louisville and it was a very long way to a hospital. </strong><br />
<strong></strong><br />
<strong>Her friends dropped off. Some were afraid after seeing a seizure. She had me and two great dads and we were her support system. I watched her 24-7. If I heard her laughing at her TV show I knew every thing was fine, but if it got quiet I would walk through the house and try not to let her know I was watching her every waking minute. Carrie lived a very isolated life. I finally had to take her out of the school system due to no radio many days on the handicapped bus and a teacher that pushed her too hard in gym class. After school she had a seizure and woke up in the hospital screaming, "I told Mr.___ I was going to have a seizure!".</strong><br />
<strong></strong><br />
<strong>She had a home school teacher come two times a week. Life went on this way. The seizures could last fifteen to twenty minutes or longer. She was put on more and more medication but nothing seemed to work sometimes. The medicine made her so tired and she slept a lot. Sometimes Carrie was so drugged she would stare out in space as if she wasn't there it. It was so sad and heart breaking for me. </strong><br />
<strong></strong><br />
<strong>We were at our wits end. I feared she would die. The doctor suggested brain surgery. My husband, her stepdad, also had seizures and brain surgery and it helped. So, we went for the surgery locally and I don't suggest this to anyone.</strong><br />
<strong></strong><br />
<strong>We went through a battery of tests and found out she was mildly to moderately impaired. She went for a pet scan for the surgery and it went fine. At 5:15 the next morning Carrie woke up and wanted a drink of Coke. The nurse gave her some and Carrie went back to sleep. She woke at 5:30 and started seizing. Medication was ordered for four hours. She turned blue and wasn't getting oxygen. The doctors gave an order to put her in an induced coma. When the medication was given to put her to sleep it was more than her body could take. She began to shut down. The coma should have been ordered within a very short window, not hours, and she was given too much medication. This was a Saturday morning. My daughter was twenty-two years old. By Sunday they said she was brain dead and they needed to remove the breathing machine. It was a very hard decision I had to make. My daughter died that afternoon.</strong><br />
<br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Again, I am so sorry for your loss, Jan. I think of you every day. </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">When we first met on the CBD oils page and you spoke of this of this tragedy I was struck by your willingness to work on behalf of others. A lot of people might want to keep to themselves after losing a child, understandably. But you are out there advocating for better options for families at similar risk. Can you tell us what motivates you to do that?</span><br />
<br />
<strong>Jan:</strong><br />
<strong></strong><br />
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<span class="null"><strong>I lived knowing deep inside that my daughter's chances of living were not good at all. I had a funeral home director come to my home one day and I was looking at caskets. My daughter overheard us talking about a pink casket called The Princess. She came in the room and said, "I want that one". I knew I could not make decisions like this if I lost her. She did have a casket, not The Princess. They change the models each year. When you live the nightmare of intubation in your living room and clothes being cut off after an ER run, seeing your child lie lifeless on a life support, wondering if she will walk or talk or even know who you are when she wakes up - it forever changes a mother .</strong></span><br />
<span class="null"><strong></strong></span><br />
<span class="null"><strong>I have been where so many parents are today. It seems Neurologists can do nothing but write out something on a RX pad. When I heard about the CBD oil I saw a light, a ray of real hope for children like my daughter that traditional medicine cannot offer and hope for children living like my daughter. If I sat back and did not tell her story I feel she would have died in vain. And, if her death can help one child suffering with epilepsy or change the mind of one doctor, mayor, senator or one voter out there, then I feel I have done what my daughter would have wanted me to do. I could not save her from death, but we now have hope for epilepsy that the doctors cannot even fully understand with all their modern technology.<br />
<br />
I believe with all my heart CBD oil is one of the oldest medications known to man and has been looked over long enough. It is time for society to take this seriously. We are talking about many children out there that are suffering, and parents that for once are telling stories of joy and true miracles. These mothers can still buy pink tennis shoes and pink dresses, unlike my last purchase - pink and white roses to go on a pink casket. I know this may seem somewhat harsh but I believe in reality and not candy coating anything.</strong>
</span><br />
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<span class="null"><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:<br />
<br />
I don't think it sounds harsh at all. You couldn't have stated it better. Thank you for sharing your daughter's story with us and for your advocacy on behalf of children battling epilepsy. People like you restore my faith in humanity every day, Jan. Is there anything else you'd like to tell us about your daughter, epilepsy, or your thoughts right now? </span></span></div>
<span class="null">
</span><br />
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<strong>Jan:</strong><br />
<strong></strong><br />
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<span class="_2oy"><span data-reactid=".r[53bh].[1]"><strong></strong></span></span> </div>
</div>
<strong><span class="_2oy">
</span></strong><strong>There will always be pain and anger in my heart, but how would I have felt if this had happened on my watch? Did god spare me something my mind could not have dealt with? I miss my daughter so much and do have more of a reason to go on. </strong><br />
<strong></strong><br />
<strong>I knew that marijuana helped epilepsy in 1992, but didn't know much about medical marijuana. I can see your fight to keep your child alive or to keep him from facing long term damage. I can tell you are doing the right thing. Never give up. I fought the Louisville EMS because they carried no Valium on their trucks to stop or slow down seizures. It was not a easy fight, but I stayed faithful, wrote letters, and followed up on my letters. There was a threat made if I went to the media, but I kept on. I knew when the Captain knocked on my door one day that I was being heard: one little woman in a wheel chair that lacked a lot education. Finally, I got a call that there was Valium being put on the trucks - so please be sure there is Valium on your EMT truck if you have to call them for help. </strong><br />
<strong></strong><br />
<strong>I would like to say I am so sorry people are still going through this. One problem is people, especially in Kentucky, just don't want to open up to it or believe CBD oil can work. They also fear this drug due to much dishonesty on our government's part and it not doing the right thing. </strong><br />
<strong></strong><br />
<strong>But the public is getting wiser and stronger now thanks to the parents and Colorado for doing the right thing. I will do anything in my power to help. And, remember you are not alone. I see and feel your struggles and I understand: talk, educate, be a power house for this CBD oil. Be honest about the cost and what can be done to put this oil in the hands of people who so desperately need this. Please don't sit and do nothing. Tell your story; tell your pain. Each and every voice, letter, and face at a meeting counts. I believe the faces, the head counts, have gotten many states this medication. It is not going to happen by itself. Louisville, Frankfort, and Washington need to see a large turnout, larger than they have ever seen. Please don't sit idle. </strong><br />
<strong></strong><br />
<strong>Last of all, be patient with the medications currently available that slow down your child's brain, even when you don't feel patient. It is as frustrating for the child. Tell your child how much you love him. Those three words were said very often in my home. And, remember all a child has is you, the parent to protect him and make him feel safe. Take a CPR course. Children's gave me one-on-one free. If you don't know what to do for a seizure ask, read. All we can do is our best but in the end it is the little things that matter the most: being there, giving time and love, and now, hope for a better future.</strong><br />
<br />
<br />
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Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com5tag:blogger.com,1999:blog-7016719073470800779.post-74850605189136825512013-11-17T14:00:00.001-08:002013-11-28T04:03:12.904-08:00Allow CBD Oil in Alabama for Carly: Police Officer Dad Dustin Chandler Speaks Out<img alt="" aria-busy="false" aria-describedby="fbPhotosSnowliftCaption" class="spotlight" height="251" src="https://scontent-b.xx.fbcdn.net/hphotos-ash4/1459765_363170747150714_1155024154_n.jpg" width="320" /><br />
<br />
This is an interview with Dustin Chandler. He is father of Carly, who has a rare epileptic condition called CDKL5. Dustin is a board member of The International Foundation for CDKL5 Research. He also actively advocates for CBD oil to become a legal option for Alabama's epileptic children.<br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><span style="color: #0b5394;">Can you tell
us a bit about yourself? And can you talk about what life is like for your epileptic
daughter?<o:p></o:p></span></span></span></div>
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><o:p><strong>Dustin:</strong></o:p></span></div>
<strong></strong><br />
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><strong>I was born and raised in Alabama. I am a Police Officer in a
town just south of Birmingham and I love my job. I have a typical four year old
son who is as “boy” as they come. I am also the proud father of Carly who will
be 3 in February. Carly was diagnosed with a rare neurological disorder called
CDKL5 in 2012. Since her diagnosis we have been trying to bring ultimate
awareness to the disorder since only 600-700 worldwide have been diagnosed.
</strong></span></div>
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><strong></strong></span> </div>
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><strong>Carly has anywhere from 2-5 seizures per day and currently they are complex
partials. Unfortunately, her mother Amy and I live everyday worrying about
when Carly's next seizure might occur. Once Carly has a seizure we have to alter
our day to accommodate the lethargy that follows. Just recently our four year
old son started to “roll play” like he is having a seizure like his “sissy”. It
breaks my heart to know my son must witness these episodes of his younger
sister and then “act” them out. <o:p></o:p></strong></span></div>
<strong>
</strong><br />
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><strong>When Carly was diagnosed I looked into her gazing eyes and made
the promise that I would do everything in my power to give her the best life
possible. That is a promise I will keep as long as I am alive. <o:p></o:p></strong></span></div>
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><strong>The fear of SUDEP (Sudden Unexpected Death in Epilepsy) also is in our minds.</strong><span style="mso-spacerun: yes;"> </span></span><span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><o:p></o:p></span></div>
<br />
<span style="color: #0b5394;">Suzanne: </span><br />
<span style="color: #0b5394;"></span><br />
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><span style="color: #0b5394;">How does your support for CBD oil, technically a form of medical marijuana, reconcile with
your vocation as a police officer? Did you always support this cause or was it
inspired by the every day reality in your home?<o:p></o:p></span></span></div>
<br />
<strong>Dustin:</strong><br />
<strong></strong><br />
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><strong>As a Police Officer I uphold all the laws that are on the books
and that most definitely includes the drugs laws of Alabama. That is something
I was sworn to do and take very seriously and that stance will not change. It
has only been recently that I have started to look into the positive effects
that CBD’s could potentially have on Carly. Since there are no psychoactive
properties, it's non-addictive and has no side effects, I began to be a vocal
proponent of CBDs. You can say I was inspired by the promise that I made to
Carly about giving her the best quality of life. She is my inspiration and
helping other suffering children of Alabama is as well. <o:p></o:p></strong></span></div>
<strong>
</strong><br />
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<strong><span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;">I am not asking anyone to break the law nor am I wanting to
break the law. I want there to be proper legislation set forth in Alabama to
allow parents to explore treatment options other than traditional methods that
most of us have tried and failed. </span><span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><o:p></o:p></span></strong></div>
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne: </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><span style="color: #0b5394;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">How do you think CBD oil might help your daughter?<o:p></o:p></span></span></span></div>
<br />
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><o:p><strong>Dustin: </strong></o:p></span></div>
<strong>
</strong><br />
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><strong>CBD oil has the potential to change the course of not only
Carly’s life but also that of my family. It would hopefully be affective in
controlling seizures and free us from the nightmare of wondering when the next
one will strike.<span style="mso-spacerun: yes;"> </span>Since there is not much
known about her disorder, CDKL5, there could possibly be more extraordinary
benefits we do not know about yet. <o:p></o:p></strong></span></div>
<strong>
</strong><br />
<span style="color: #0b5394;">Suzanne</span><br />
<span style="color: #0b5394;"></span><br />
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><span style="color: #0b5394;">What do you want others to know about CBD oil for epilepsy?</span></span></div>
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"></span> </div>
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><span style="font-family: inherit;"><strong>Dustin:<o:p></o:p></strong></span></span></div>
<strong>
</strong><br />
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><strong>I want everyone to know that CBD-oil is not going to get a child
“stoned”. CBD oil is extracted from the marijuana plant and used as a medicine.
I want people to open their minds and think about the thousands of children
like Carly that suffer everyday and the help CBD-oil could possibly provide.</strong> </span><span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><o:p></o:p></span></div>
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><o:p><span style="font-size: large;">How You Can Help in Alabama</span> </o:p></span></div>
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><o:p></o:p></span> </div>
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><o:p>Please watch this short video of Carly having a seizure and then take the action steps below. I know it might seem strange that I'm asking you to watch the beautiful little girl pictured above convulse in pain. You may know that seizures happen to some people out there, but until you actually see a child in their clutches that's just a concept in your mind. Yet this is a concrete reality of life for too many children. </o:p></span></div>
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dwcmqJdTQLHJKZ6OYX00BDRii7_-mLri5GM4KWwC9aC3gHTZ_4rXRXIuGiEkgrOyrjzdQnEh9CSvFPMsTklcQ' class='b-hbp-video b-uploaded' frameborder='0'></iframe></div>
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><o:p></o:p></span> </div>
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><o:p>If there is a chance CBD oil can end this then Carly deserves that chance. Representative Patricia Todd of Alabama has sponsored a bill to help sick children in that state access cannabidiol oil. If you live in Alabama please take the action steps below.</o:p></span></div>
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><o:p></o:p></span> </div>
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<span style="color: #1a1a1a; font-family: "Arial","sans-serif"; font-size: 13pt; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-size: 10.0pt;"><o:p></o:p></span> </div>
<strong><span style="font-family: "Courier New", Courier, monospace;">1. Please sign </span></strong><a href="http://www.change.org/petitions/governor-robert-bentley-seek-legislation-allowing-the-use-of-cbd-oil-as-a-treatment-option-for-epilepsy"><strong><span style="font-family: "Courier New", Courier, monospace;">this petition</span></strong></a><strong><span style="font-family: "Courier New", Courier, monospace;"> to Alabama governor, Robert Bentley. It asks him to support legislation allowing CBD oil for epileptic children.</span></strong><br />
<strong><span style="font-family: "Courier New", Courier, monospace;"></span></strong><br />
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><o:p><strong><span style="font-family: "Courier New", Courier, monospace;">2. </span></strong><a href="http://www.legislature.state.al.us/misc/zipsearch.html"><strong><span style="font-family: "Courier New", Courier, monospace;">Contact your legislator</span></strong></a><strong><span style="font-family: "Courier New", Courier, monospace;"> and ask him or her to support Carly's Law in Alabama. Just enter your zip code and his or her contact page will appear. </span></strong></o:p></span></div>
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><o:p><strong><span style="font-family: "Courier New", Courier, monospace;"></span></strong></o:p></span> </div>
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<span style="color: #1a1a1a; font-size: 11pt; mso-bidi-font-size: 10.0pt;"><o:p><strong><span style="font-family: "Courier New", Courier, monospace;">3. Contact Dustin at </span></strong><a href="mailto:info@know5.org"><strong><span style="font-family: "Courier New", Courier, monospace;">info@know5.org</span></strong></a><strong><span style="font-family: "Courier New", Courier, monospace;"> to get involved, or visit <a href="https://www.facebook.com/carlyslaw?fref=pb&hc_location=profile_browser">Carly's Law on Facebook.</a></span></strong></o:p></span></div>
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Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com19tag:blogger.com,1999:blog-7016719073470800779.post-32925719593928400962013-11-16T07:00:00.000-08:002014-05-10T07:34:06.564-07:00An Autism/CBD Oil Success Story: Rebecca & Calvin<span class="null"></span><br />
<img alt="Photo: It was done. <3" class="scaledImageFitWidth img" height="406" src="https://scontent-b-ord.xx.fbcdn.net/hphotos-prn2/p480x480/1465352_10152042478484283_2039420285_n.jpg" width="403" /><br />
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I recently interviewed Rebecca. Her son Calvin has autism without epilepsy and takes CBD oil. Autism is not a qualifying condition under Colorado's medical marijuana laws. Calvin qualifies under the pain category.<br />
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This story will break your heart, then make it leap with joy.<br />
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<span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><span style="color: #0b5394;"><strong>Suzanne</strong>: </span></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Hi, Rebecca. Can you tell us what your son's life was like before he started on CBD oil?</span><br />
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<strong><span style="color: black;">Rebecca:</span> </strong><br />
<strong></strong><br />
<strong>Calvin's life was very difficult. Calvin is 15 years old, has autism, is nonverbal and has been self-injurious and aggressive since he was little. His behaviors escalated out of control in December of 2012. I'm guessing that the increased behaviors were onset by puberty. It was unbearable.</strong><br />
<strong></strong><br />
<strong>I too, don't want to expose Calvin's most difficult times. I want to protect him but I understand the power of a testimony.</strong><br />
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<strong>Calvin would wake up screaming. He didn't walk anywhere, he ran, like he was panicked. He would run up the stairs, beating his head on the wall, screaming, "bath time" as he cried. He wanted a bath but as soon as I put him in the bathtub, he would scream, bite himself and beat his head on the tiled walls. Nothing I did made him content. Public schools were not an option for us. They couldn't handle Calvin, so we put him in an ABA therapy center. The ABA therapy helped, but like I said, all hell broke loose in December 2012. It was not uncommon for us to have to pull over to restrain Calvin in the mornings. He was physically aggressive with his younger brother (who also has autism) and he would beat his head on the windows so hard that the glass would push out and I could see outside. </strong><br />
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<strong>My husband and I would drop Calvin off and cry the whole way home. We cried but we didn't speak. We didn't have to. We knew what the other was thinking. Every autism mom's biggest fear. Institutionalization. I didn't want to institutionalize him. I wanted my baby to be home with me. I found myself having a nervous breakdown in the parking lot of his therapy center. I found myself saying things like, "I can't do this anymore, I can't help him, I can't live like this." All things that I'd thought for months, but never said. I was exhausted.</strong> <br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/calvin3.jpg.html" target="_blank"><img alt=" photo calvin3.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/calvin3.jpg" height="320" width="213" /></a>
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<strong>Not only were Calvin's behaviors so out of control that we spent several hours restraining him per day, he was also waking up in the middle of the night and leaving the house. He figured out that he could climb out the window and leave - and he did. Our house backs to a four lane road and Calvin fears nothing. It was horrible. The only thing I can describe his life as, was hopeless. We were at the end of our rope. All of us.</strong><br />
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/calvin1.jpg.html" target="_blank"><img alt=" photo calvin1.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/calvin1.jpg" height="320" width="213" /></a>
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne: </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Can you tell us what happened to Calvin after starting Charlotte's Web? How is life different for him compared to before?</span><br />
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<strong>Rebecca: </strong><br />
<strong></strong><br />
<strong>We started with edibles. We were put on a waitlist for Charlotte's Web. It would be several week before we could begin the oil and we couldn't wait. </strong><br />
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<strong>When I bought the edible I was told that if this would help him we'd notice a change in about forty-five minutes. We dosed him. It was an incredible moment. My son was legal and we had the edible. Totally surreal. That faded quickly though, Calvin was screaming, biting himself, head banging, jumping up and down as hard as he could. We waited. forty-five minutes came and went. My husband and I looked at each other, wondering if this was just another thing that we had such great hope for that didn't work. An hour passed, an hour and fifteen minutes - nothing. Then, at an hour and a half after his dose he looked at me. He cracked a small smile. We waited. Calvin began to calm down. He stopped jumping, running, screaming, hitting his head etc. This was right around the time (give or take half an hour) that we'd have to take Calvin down to the basement to prevent him from hurting himself. This is when we'd have to restrain him.</strong><br />
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<strong>Calvin sat with us in the living room. He wasn't engaging in his 23 step OCD ritual that he had to do before entering the bathroom. Also, he wasn't asking to go to the bathroom every five minutes. He was just sitting with us, watching a video on his Ipad. Typically, he'd find a video and instead of watching it through, he'd pick a certain part and play it over and over. Not that night: he just sat nicely, watching his video appropriately.</strong><br />
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<strong>After about an hour Calvin took me into the kitchen and asked me for applesauce. We didn't have any and he knew that. He opened the augmentative app on his Ipad and said, "store." Then, he pointed at the front door and said, "go." I went. I was most definitely going to reinforce his language.</strong><br />
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<strong>His quality of life has gone through the roof. The MMJ slows him down so he can function. He's so much more focused, too. He's learned how to sync his IPad and add movies to it. Before, if it took more than 30 seconds to add a movie, he would become aggressive and self-injurious.
</strong><br />
<strong></strong><br />
<strong>Two weeks ago, Calvin wanted a song on You Tube. He was searching "animals" in his augmentative app. He kept looking at me, like he was unsure of something. Then he pushed "bear." Immediately after he started singing, "oh the old gray mare she ain't what she used to be." See, he wanted that song but because mare was not listed in the animal section he didn't know how to request it. He found the bear because it rhymes. He's problem solving!!!!!</strong><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne: </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Tears here. Tears, Rebecca, because I understand what this means: quality of life for your boy, finally. He can finally find himself and explore his world without being subverted by electrical storms in his brain. Huge! </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #134f5c; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><span style="color: #0b5394;">What do you want people, and the medical community, to know about CBD oil?</span> </span><br />
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<strong>Rebecca: </strong><br />
<strong></strong><br />
<strong>I'd like for people to know that MMJ is safe and effective. Initially, I was overcome with joy and heart ache. Joy for the progress that Calvin made so rapidly and heartache for everything that he had to go through before MMJ.</strong><br />
<strong></strong><br />
<strong>For years I took Calvin to various doctors. I told them what I was seeing and everything that I reported was discounted. I told them about the pain that he experienced and everything that I said was blown off. "Your son is behavioral." That was the answer that I was given for years.</strong><br />
<strong></strong><br />
<strong>I would report that Calvin had blood in his stools after ingesting gluten. I took him for allergy testing and was told that Calvin does not have a gluten allergy. I knew he did. Why wasn't it showing up?</strong><br />
<strong></strong><br />
<strong>Calvin would hurt himself, I would report that he was experiencing pain in his gut. They did not listen. I found myself in a world full of moms who were treating their kids on their own because the medical community failed them. Naturopathic doctors, homeopathic doctors, DAN doctors, special diets, protocols for ingesting clay. These moms were seeing what was seeing: real medical issues with their kids. The medical community had no answers. We tried these things with nothing to show but empty pockets. We tried to go down that road but to no avail.</strong><br />
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<strong>Instead of making a statement to people and to the medical community I'd like to ask a question. Why is it so shocking that a mom would try medical marijuana for their child? After discovering that we have an endocannabinoid system, why not feed it? Why is it so socially acceptable to give kids mind altering, synthetic meds that have horrible side effects? Why will doctors recommend removing part of a child's brain to stop seizures but the same doctor will tell you that MMJ is dangerous? Also, why are people so outraged about a child getting "high?" Especially, parents who have their kids on mood stabilizers, anti-psychotic, anti-depressants and benzos. Why is a man made chemical that causes a high ok? I just don't get it.</strong><br />
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<strong>I will not give up on my son. I will do anything to help him. This is helping him tremendously. Autism must be added to state's lists of qualifying conditions. Especially now. Autism effects 1/30 school aged boys. We need change now. I don't want to see one more child institutionalized, one more family torn apart. Since sharing my story, my inbox is flooded with people in the same situation that I was in. If you don't have a child like this, you can not possibly understand the constant state of fear that we live in. Not being able to sleep because your child is eloping in the middle of the night, having to restrain him on a daily basis. Wearing long sleeved shirts to hide the bruises and scratches on your arms. Please, have compassion on us. We only want to help our kids.</strong><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">You mentioned in another conversation that at fifteen your son was non-verbal when he started talking after beginning CBD oil. Can you tell us about that? This is very rare. The only other case of a nonverbal fifteen year old I know of who started talking was a boy who had recently begun neurofeedback therapy.</span><br />
<span style="color: #0b5394; font-family: Arial;"></span><br />
<span style="color: black; font-family: inherit;"><strong>Rebecca:</strong></span><br />
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<strong>Yes, and I'm so glad that you asked today! We adjusted our dosing yesterday, and we're seeing more results. Today, we picked Calvin up from therapy and asked him what he wanted to do. He said, "I need some things from the grocery store." This phrase was on his old augmentative device. We said, "Do you want to go to the grocery store or do you want to go to Party City?" (Every time we go to Party City, Calvin picks balloons) Calvin said, "Party City, balloons." So exciting! Not only was he telling us that he wants balloons, his cognitive language is improving so much that we can have verbal exchanges with him!
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<strong>Calvin is 14, almost 15. He is considered non-verbal. Before MMJ, he had a few words. "Pop", "all done", "go to bathroom", and an occasional "yeah". The night that Calvin took his first dose, he was watching Elmo in Grouchland. He's seen the movie 9836578 times. For the first time he started saying every word that they said, as they said it. He was singing too. </strong><br />
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<strong>We were so happy but as you know, we want spontaneous, appropriate language. We started getting it. We were at PT and Calvin's therapist was so impressed with Calvin's ability to cooperate. Our typical PT appointment looked like this- Calvin hitting, kicking and scratching the physical therapist, as he tried to stretch Calvin's legs. Sometimes, Calvin urinated on himself because it was so painful. Side note- Calvin was having 5-7 instances of incontinence at his therapy center, per week. He has not had one single instance since he started MMJ, two months ago!</strong><br />
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<strong>Back to PT- Calvin was doing so well since the MMJ. His therapist was so impressed. He looked at Calvin and said, "Man, you are doing such a great job, Calvin. I'm really proud of you." Calvin looked up at him and said, "thank you." Clear as day! We're seeing this daily. He started saying "no" too. That has made things so much easier. He has several new words and we're only two months into MMJ. My favorite, was day 13. Calvin woke up and came into the living room to sit down. I was walking to the back door to let the dogs in. Calvin and I locked eyes. We smiled at each other and he said, "love you." I waited 14 years for that!</strong><br />
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<strong><span style="color: #351c75; font-size: large;">Editor's Correction: 4/10/14</span></strong><br />
<strong><span style="color: #351c75; font-size: large;"></span></strong><br />
<strong><span style="color: #351c75; font-size: large;">Though this interview focuses on CBD, it has been brought to my attention that Calvin also takes a full cannabis oil strain. It takes both to impart these benefits to him, as is anecdotally the case for many children with autism and some kids with epilepsy, though others with epilepsy just take CBD. </span></strong><br />
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<img alt="" class="_46-i img" height="149" src="https://scontent-a-ord.xx.fbcdn.net/hphotos-prn2/s403x403/1394124_461375003971413_235321016_n.jpg" style="left: -2px; top: 0px;" width="403" />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com264tag:blogger.com,1999:blog-7016719073470800779.post-80919261736491360892013-11-15T15:07:00.001-08:002014-01-06T04:56:10.289-08:00Why Changing Cannabis's Schedule 1 Drug Status Matters: A Conversation With Maria laFrance<br />
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The following is a conversation with Maria LaFrance of Iowa. Maria is mother of a son with autism and epilepsy. Since CBD Oil is not yet legal in Iowa her son has not tried it. Maria ardently advocates for the legalization of medical marijuana in all fifty states.<br />
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<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Tell us what you think is the most effective strategy toward legalizing CBD oil for these medically fragile and chronically ill children?</span><br />
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Maria: <br />
<span class="null"><br />
Ok, wow! Well, there are differing trains of thought on how best to get patients legal access. Some people say focus on your state, others think federal re-scheduling will solve this faster. I have my bets on federal, but I haven't ignored my state. And then there are people advocating for only high-cannabidiol CBD oils vs. the people wanting high psychoactive antioxidant THC for cancer vs. the full-on "legalize it all" recreational users. Then there's people who've been wanting this for years who may be a bit justifiably cynical, but they need to be supportive of new people's efforts, like yours and mine.<br />
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All of these differences in opinion tend to spark animosity among people who all want access to medicine. I support all of these efforts, I say try whatever works and see if it sticks. We need to work together. Any form of legalization in any state or region helps children and sick people. Full legalization sounds scary to some, and that's not my fight, but Colorado, Canada, France, Israel and other places where its legal haven't gone off the deep end, and their kids get medicine. <br />
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<em><strong>In the realm of justice and righting wrongs, federal re-scheduling out of Schedule I must happen, because Schedule I is for drugs that have no accepted medical benefit with high potential for abuse, which is why I started the petition after reading the Gallup poll and researching the evidence. </strong></em>
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I'm trying all angles. I called and wrote all the news, and since they didn't reply, I made a YouTube video, and sent it to legislators. Since they didn't respond, then I started calling. Wow, the power of the phone and face-to-face trump email. Every politician I've talked with (I'm just getting started on that) has been polite and responsive. And they have told me that they don't hear from their constituents enough on this issue. <br />
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If a state is lucky enough to have a bill, or even if it doesn't, it's good to call on experts from other states for help. Our state is hosting another state's MMJ policy director to talk about how such a program might be set up. And moms are getting involved, and politicians know better than to cross a mom. Thank you, for getting involved, Suzanne. <br />
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Of course, the fastest way to get legal access is to move to a state where it's legal. But not everyone is able to move. It's not fair that families who've endured the tragic conditions of epilepsy, Regressive Autism, cancer, etc. already gave up their dreams of a typical life, and then to have to leave their home, friends and whatever life they managed to make in their own state. So we have to change this.
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<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
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<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">
</span></span><span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Tell us more about the federal scheduling petition you created. You mentioned that it requests a change in cannabis' Schedule 1 designation. What would the replacement classification be and what would be the implications of that change?</span><br />
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Maria:<br />
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<span class="null">Ok. As an example, let's use some of my son's prescription drugs, Ritalin and Valium. Ritalin is a Schedule II drug, and Valium is Schedule IV. I never cared what "Schedule" they were in, and we shouldn't have to as parents. On top of that, we travel with my son and his prescriptions to lots of different states, and these prescriptions are never contested. So I'm not terribly naïve, but when my son's neurologist said she can't prescribe cannabis for my son, I was surprised. Looking back, I laugh at myself that I thought she could. I've heard about people using it for glaucoma and things, and I always thought they were doing it legally. <em><strong>So, according to the Controlled Substance Act (CSA), the Drug Enforcement Administration (DEA) determines Schedules I through V substances based on criteria such as whether they have a currently accepted medical use in the US and their relative abuse potential and likelihood of causing dependence when abused. Marijuana is Schedule I, the classification schedule of having no accepted medical benefit and a high potential for abuse. Meth and opium-derived medications are Schedule II. Shocking, right?</strong></em>
</span><br />
<span class="null"><br />
There are three ways that I can see to reschedule marijuana, or cannabis. 1) Congress has the authority to change laws through bills, or to amend acts such as the Controlled Substance Act. 2) Any concerned body can petition the Drug Enforcement Agency to reclassify a specific drug. And 3), the Attorney General can remove any drug from the schedule if he finds it does not meet the requirements for inclusion in any schedule. <br />
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<em><strong>So this petition calls to reschedule marijuana, because it has accepted medical benefit</strong>.</em> It doesn't recommend to which Schedule it should be reclassified, because when you think about it, ANY other classification besides Schedule I allows sick patients to have this as prescription medicine without persecution. People have picked apart the wording or who specifically it should be addressing or who has what authority, but frankly, there are and have been lots of petitions to the DEA, lawsuits against the HHS, and even past petitions to the White House: maybe this approach is nicer and kinder, and more importantly, I thought the timing was right. Minds are being changed as we read this. The petition itself wouldn't remove it from Schedule I, but it could be a place where the 58% in favor can unite. And states can print off the signatures and use them as proof in their state legislature.<br />
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<img class="rg_i" data-sz="f" name="bdEWKM5SOdaNfM:" src="https://encrypted-tbn2.gstatic.com/images?q=tbn:ANd9GcRHXCTdeVTnBdEFooCsZHGIiWJpCCrmG3puw6zjElL3X_0UYGb6sg" style="height: 188px; margin-left: 0px; margin-right: 0px; margin-top: 0px; width: 179px;" /><br />
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<span style="color: #073763;"><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne: <br />
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Well, The American Medical Association should sign this petition then since it recommended in 2009 that the federal government change the Schedule 1 classification for marijuana. They know that this designation makes it mostly illegal for researchers to study the medicinal properties of cannabis. And since available research from other countries suggests that cannabis does indeed have medical benefits these restrictions concern the AMA. Removing Schedule 1, then, would open up many research possibilities now prohibited by law. And yet, despite this input from America's most prestigious medical body still no change from the federal government.<br />
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How many signatures does this petition require to be viewed by The White House? And how much time is left to obtain them?</span></span><br />
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Maria: <br />
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<em><strong>The White House asks 100,000 signatures by Nov 30</strong></em>, but they have responded to petitions with far fewer signatures. All we need is one major news agency to adopt the petition and we'll get their attention, but people fighting this a long time are likely petitioned out. But the White House is not dealing with an ordinary petitioner. I'm going to talk with them about their clunky process and ask for more time, and explain the new reasons why. I'm not giving up on the federal route, and neither are others. There is a new petition on change.org yesterday, it had 9 signatures. So I helped him out and was signature 10. Cost me nothing.<br />
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<img class="rg_i" data-sz="f" name="dmatCOBVdrlMgM:" src="https://encrypted-tbn1.gstatic.com/images?q=tbn:ANd9GcQVhBq4QnNkVZjidXIFZaYck1uOxvFU1lh2aJ8QmIEY0goYwhyE" style="height: 198px; margin-left: 0px; margin-right: 0px; margin-top: 0px; width: 198px;" /><br />
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</span>Maria:<br />
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Because the government has been wrong on marijuana, many people feel their voices haven't been heard and have lost faith on this issue. But I haven't, you hear me: Mr. Obama, Holder, Leahy, Grassley, and Ms. Leonhart? I believe in you and I'm trying to get your attention!<br />
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<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Suzanne:</span><br />
<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Though overall government progress has been slow, I think the Obama Administration has been a friend to this issue. Its decision not to prosecute medical marijuana users is responsible for our having been able to learn that Charlotte's Web helps intractable epilepsy. Prosecutions would have most parents too afraid to try the oil for fear of being arrested and having their children taken into state custody. And if they did try this they certainly wouldn't be shouting success stories from the rooftops for our inspiration.</span><br />
<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">But in three years we will have a new president and there's no guarantee the next guy will maintain the no prosecution policy. What then? After years of drastic seizure reduction will kids with intractable epilepsy have their treatment yanked out from under them? Will parents be thrown in jail for giving their kids an oil that wouldn't get them high if they drank a pint of it? Will those children then be sent to state custody with bottles of anticonvulsants that didn't work the first time? And will doctors lose their licenses for prescribing this plant that heals? Cannabis must be de-classified from Schedule I now! </span><br />
<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #073763; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Thank you for your hard work and dedication, Maria. </span><br />
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<strong><span style="font-size: x-large;">HOW YOU CAN HELP</span></strong><br />
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<span style="font-family: Georgia, "Times New Roman", serif; font-size: large;"><strong>Sign the White House Petition that requests cannabis' Schedule 1 designation be removed.</strong></span><br />
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<img alt="" class="img" src="https://fbexternal-a.akamaihd.net/safe_image.php?d=AQDh_-wdzaP5NgZq&w=155&h=114&url=http%3A%2F%2Fpetitions.whitehouse.gov%2Fprofiles%2Fpetitions%2Fthemes%2Fpetitions44%2Fimg%2Ffb_share_we_the_people.png" /><br />
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<a href="https://petitions.whitehouse.gov/petition/require-us-congressional-judiciary-committees-reclassify-medical-marijuana-health-related-treatments/g7SZz6ym">Click here.</a><br />
<br />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com23tag:blogger.com,1999:blog-7016719073470800779.post-57956525533070754702013-11-10T10:58:00.001-08:002013-11-28T04:05:05.292-08:00CBD Oil Success Story: An Interview Physician Dad Tom Minahan<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/minahan1.jpg.html" target="_blank"><img alt=" photo minahan1.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/minahan1.jpg" /></a>
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<span class="null">The following is an interview with Emergency Room Physician, Tom Minahan. Today Tom speaks in his capacity as father of a daughter with intractable epilepsy. Well, intractable before CBD oil - that is.</span><br />
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<img alt="" aria-busy="false" aria-describedby="fbPhotosSnowliftCaption" class="spotlight" height="180" src="https://scontent-b-ord.xx.fbcdn.net/hphotos-ash4/1001275_461114473997466_210406075_n.jpg" style="height: 180px; width: 180px;" width="180" /><br />
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<span class="null" style="color: #351c75; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">SUZANNE:</span><br />
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<span class="null" style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Hi, Tom. First I'd like to thank you for your willingness to share this story, including your real name and profession. Like some others I've interviewed, your child already has access to the oil. You could have gone quietly on your way, enjoying the fruits of labor. But instead you bravely speak out so your voice can benefit others. I really appreciate that. </span><br />
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<span class="null" style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Can you tell us about your family? What is your profession? And why did you resort to CBD Oil?</span><br />
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<span class="null"><span style="color: #660000; font-family: Georgia, "Times New Roman", serif;">TOM</span>: </span><br />
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<span class="null" style="font-family: Georgia, "Times New Roman", serif;"><strong>We are a family of 6 with kids ages 7-12. My wife is an emergency room nurse and I'm an emergency room doctor. </strong></span><br />
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<span class="null" style="font-family: Georgia, "Times New Roman", serif;"><strong>Our 11 y/o daughter has had seizures for 10 years and as many as 30-40/month.
When my daughter had her first seizure, I thought I already knew all I needed to know. After 10 years of reading, nearly every drug, diet therapy and multiple EEG's looking at surgical options, we were not any better off....in fact, the seizure frequency had increased to a number we had never experienced before.
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<span class="null" style="font-family: Georgia, "Times New Roman", serif;"><strong>It's my belief that 90-99% of people using weed are just getting high. While my world is skewed in the ER, that is what I saw. I NEVER saw any 'real' uses for marijuana.
I was even told by people that they heard about marijuana for pediatric epilepsy....."sure, I'll teach my kid to smoke".
I know drug use and abuse; I see it everyday. People get marijuana in their system by smoking....some eat it, but that's even crazier!
My cousin tells me about the CNN special.
Seriously?
Was I that stubborn?
Risk of death, zero?</strong></span><br />
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<strong><span style="font-family: Georgia;"><a data-ved="0CAUQjRw" href="http://www.google.com/url?sa=i&rct=j&q=&esrc=s&frm=1&source=images&cd=&cad=rja&docid=gCPqKZbumeBkBM&tbnid=u6h0CjnA48IUoM:&ved=0CAUQjRw&url=http%3A%2F%2Fwww.kyfreepress.com%2F2013%2F08%2Fwhooping-up-synthetic-drugs%2F&ei=WNZ_UoSPCPOusATC9oHgDw&bvm=bv.56146854,d.cWc&psig=AFQjCNGNCU-LjlkqG0zjGqKUZaF_yHyUJw&ust=1384196044586738" id="irc_mil" style="border: 0px currentColor;"><img height="199" id="irc_mi" src="http://www.kyfreepress.com/wp-content/uploads/2013/08/sanjay-apology-meme-300x199.jpg" style="margin-top: 97px;" width="300" /></a></span></strong><br />
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Well, right before starting our well-published epileptologist said we could try cannabis ("but there's not been any studies", he said). So he suggested Felbatol.
I immediately said no to Felbatol.
Blood draws every 2-4 weeks to watch for aplastic anemia, a potentially deadly problem.
So, deadly medicine with blood draws or this socially unacceptable "schedule 1" drug?
We went forward with the safer approach and kept it quiet for a couple of weeks.
But the results were too amazing to keep this quiet.
I've researched this topic extensively and attended a conference in NY. Charlotte's Web is the highest quality material with the highest manufacturing standards. We're currently on their waiting list in CA.</strong> </span><br />
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SUZANNE:<br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I hear you on potentially dangerous pharmaceutical medications. For a decade </span><a href="http://www.nytimes.com/2013/11/05/business/johnson-johnson-to-settle-risperdal-improper-marketing-case.html?_r=0"><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">an antipsychotic drug was prescribed to autistic children that was not even FDA approved for use in kids</span></a><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">. It ended up causing some of the boys to grow breasts. Other kids developed Parkinson's like tics. The pharmaceutical company that makes the drug just settled in court for billions of dollars for false marketing. So I just shake my head when people gasp at the idea of giving kids this virtually side effect free, low THC cannabis oil that's changing the face of epilepsy as it has been known since time immemorial. </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Which oil does your daughter presently take?</span><br />
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<span style="color: #660000;">TOM</span>:<br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><strong>We use an oil. We initially tried an alcohol based, but the taste was too intense for my daughter. We went to a glycerin-based product with good success.</strong></span> <br />
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SUZANNE:<br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Can you give us a sense of how her life before starting CBD oil differs from the way it is now?</span><br />
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<span style="color: #990000;">TOM</span>:<br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><strong>My daughter's life before the CBD oil, wow!
We were on our way from LA to see our epileptologist in Baltimore for our one-hour appointment. We go through security at the airport and she seizes. She wets on the floor, ugh. </strong></span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><strong>We're early for the flight so she sleeps on my lap as we wait at the gate. First leg of the trip is through Denver. She seizes on this leg of the flight and wets her cloths again. </strong></span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><strong>As we board the next flight we ask for a towel "just in case."
Mistake.
Someone from the airline felt we shouldn't be in the plane, that it wasn't safe. After long delays and me talking with the pilot and the physician with the airline, we departed. As we're landing in Baltimore, she seizes for the 3rd time.
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<span style="font-family: Georgia, "Times New Roman", serif;"><strong>In the hotel that night, she seizes another 2 times.
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<span style="font-family: Georgia, "Times New Roman", serif;"><strong>Our expert suggested a different medication than the one she was on. This new medication can cause a deadly problem called aplastic anemia, so blood draws are done on a 2-4 week routine (on an 11 year-old). The expert also said, "you can try cannabis, but there hasn't been any studies."
As an ER doctor, I knew the incidence of death from cannabis overdose was zero.
So, blood draw every couple of weeks or try something that is "not studied" but should be safe?</strong></span>
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<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/minahan2.jpg.html" target="_blank"><img alt=" photo minahan2.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/minahan2.jpg" /></a>
<a href="http://s1190.photobucket.com/user/moonbeamdreams/media/minahan3.jpg.html" target="_blank"><img alt=" photo minahan3.jpg" border="0" src="http://i1190.photobucket.com/albums/z454/moonbeamdreams/minahan3.jpg" /></a>
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<span style="font-family: Georgia, "Times New Roman", serif;"><strong>Before we started, we had a private tutor do school at home. She wasn't picking up things in the regular classroom and the seizure frequency made school attendance too sporadic.
She's already back in school, attending 5 days a week..
And her attitude about school is now a desire to learn!
Her attitude in general has changed 180 degrees. We get in the car for church last week. As she jumps in the car she says to her brothers and sister, "good morning, how is everyone today?"
Who is this kid?</strong></span><br />
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<span style="color: #0b5394;">SUZANNE:</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">I hear professionals say that all the time - it has not been studied. But, actually there are several dozen studies dating back to the 1980s, some even funded by the National Institute of Health, on the anticonvulsant effects of cannabis (</span><a href="https://www.facebook.com/photo.php?fbid=191421274392954&set=a.171966026338479.1073741830.168755773326171&type=1&theater"><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">here</span></a><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"> and </span><a href="https://www.facebook.com/photo.php?fbid=191421431059605&set=a.171966026338479.1073741830.168755773326171&type=1&theater"><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">here</span></a><span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">). So they are out there; most doctors just seem not to know about them. </span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"></span><br />
<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">But, wow! Even though what you said about your daughter's life now versus before CBD oil is becoming a familiar story, it never ceases to amaze me. It is the same story I keep hearing from CBD families. </span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;"><em>What would you like others, including the medical profession, to know about CBD Oil for epilepsy?</em></span><br />
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TOM: <br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><strong>The medical professional community MUST know about this. How to get them to find out, is my current dilemma.
I have this platform as a dad and doctor, but I need to find the right avenue. I'm no CNN reporter.</strong></span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">SUZANNE:</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">Every person you talk with, every interview like this you may do in the future, helps get the word out. These things tend to go viral.</span><br />
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<span style="color: #0b5394; font-family: "Helvetica Neue", Arial, Helvetica, sans-serif;">When people from respectable professions, such as yourself and the police officer I'm interviewing next, speak out that opens the door for others to come forth. I thank you from the bottom of my heart. God bless you and your family.</span><br />
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</span>Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com159tag:blogger.com,1999:blog-7016719073470800779.post-18103596851072122532013-11-05T18:37:00.001-08:002013-11-28T04:10:20.610-08:00Allow CBD Oil in Kentucky for Charlie<div class="separator" style="clear: both; text-align: center;">
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What would you do if your child had thirty seizures a week? What if those violent convulsions delayed his development, disrupting his movement and balance. What if he could barely sleep or swallow and things just seemed to get worse by the day?<br />
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Would you move heaven and earth to save him?<br />
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Crystal and Eric Byrd did just that.<br />
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This week the Byrds packed up their lives, moving from Kentucky to Colorado all for their son Charlie. Charlie has Dravet's Syndrome, a genetic epilepsy that often resists treatment. In Colorado their boy can access Charlotte's Web, a low THC cannabis oil not yet legal in Kentucky that has some kids beating Dravet's. He took his first dose last night.<br />
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The Kindergartner takes four anticonvulsants that appear to be doing more harm than good. Crystal believes their side effects are slowly killing her son. <br />
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Though the Byrds would do anything to help their son, including move clear across the country, they are not happy about having to do so. They did not want to leave behind all they hold dear: their home, their friends, their church. They'd probably rather not have to navigate a new state's special needs services and those epically long waiting lists. They want Charlotte's Web legal right here in Kentucky so that the family can come back home. As it stands now, if they even step outside Colorado borders with Charlie's oil they could be arrested for drug trafficking. Drug trafficking an oil that wouldn't get you high if you drank a bucket of it!<br />
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Over the next few weeks the Byrds should know if Charlotte's Web proves to be a miracle elixir for Charlie as it has for other children. Meanwhile, in Kentucky advocates support legislation that could help Charlie come home. It could also grant thousands of autistic and epileptic children across the commonwealth access to CBD oil.<br />
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The Byrds will keep us posted on Charlie's progress with Charlotte's Web.<br />
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<img alt="Did you know that November is epilepsy awareness month? Of course you did! Did you know this?" class="_46-i img" height="195" src="https://scontent-a-iad.xx.fbcdn.net/hphotos-prn2/s403x403/1391428_552126571533665_1746537977_n.jpg" style="left: -2px; top: 0px;" width="403" /><br />
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<strong><span style="font-family: "Helvetica Neue", Arial, Helvetica, sans-serif; font-size: large;"> Help The Byrds Come Home</span></strong><br />
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<strong><span style="font-family: Arial, Helvetica, sans-serif;">If you live in Kentucky please take the following actions:</span></strong><br />
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1. Contact Kentucky's legislative line at 502-564-8100. Leave the message for the senators and representatives on the Health & Welfare committee to support a bill legalizing CBD Oil extracts for autism and epilepsy in Kentucky.<br />
</span>2. Call the legislative line at 502-564-8100. Give the operator your zipcode then ask him or her to ask your senator and representative to support the medical marijuana bill. <br />
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3.<a href="https://www.change.org/petitions/health-and-welfare-committees-kentucky-house-and-senate-majority-leader-greg-stumbo-governor-steve-beshear-sponsor-a-bill-in-2013-to-grant-autistic-and-epileptic-children-legal-access-to-cannabidiol-oil-cbd-oil">Sign the petition asking</a> the Kentucky state legislature Health and Welfare committees in both chambers, House leader Greg Stumbo, and Governor Steve Beshear to support legislation allowing Kentucky children with autism and epilepsy access to CBD oil. <br />
<strong><span style="font-family: Arial; font-size: large;"></span></strong><br />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com17tag:blogger.com,1999:blog-7016719073470800779.post-67002888863742602542013-11-04T10:48:00.000-08:002014-01-24T15:35:31.471-08:00Allow CBD Oil in Kentucky for AlexMy name is Suzanne. I am the mother of a son with Regressive Autism and epilepsy. I want Kentucky to legalize CBD oil so my son and those like him can live their full potential. I don't want to do what I am about to do, though. I don't want to bare before the world my son's most vulnerable moments in life. My maternal instinct is to fiercely protect his dignity and there is nothing dignified in what I'm about to tell you. But families across this country are being told no by politicians who cannot begin to fathom what our children go through. They only know if we tell them, sparing no detail, so here it goes.<br />
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Alex was diagnosed with autism at age three. He was so high functioning that the child psychiatrist came back three times before rendering a diagnosis. All experts agreed that Alex was brilliant, so we had every reason to believe his future could still be bright. But by age six my son was severely autistic and back in diapers, with an IQ of 52. Nobody knew why. <br /><br />
His aggression was constant. Alex bit his own arms up and down and attacked me constantly. I couldn't work because I never knew if I'd need to remove him from school on a given day. Driving by car was terrifying because he'd pull me into the backseat by my hair as I struggled to remain on the road. Then he'd open the car door and try to jump out while it was moving. Grocery shopping was equally impossible because he'd take me to the floor by my hair as shoppers looked on in disgust. Not one person ever offered to help. To them I was just another mother who couldn't control her kid.<br />
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Clearly this child was in pain. It got so bad that he could barely function outside his home. Doctors said these behaviors were the nature of autism and there was not much we could do. When some friends suggested we rule out seizures I made an appointment with a neurologist. On the way to one appointment Alex dragged me by my hair through the streets of downtown Louisville. Once inside he lunged at my neck and missed, breaking my bra strap and yanking the entire thing off. That poor neurology intern bolted the room and brought in the big guy.<br />
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Anticonvulsant medication alone was obviously not cutting it, so they put him on Prednisone. On steroids my son's development took off. Alex grew more verbal and we got to know him on a whole new level. And most autistic stereopathy disappeared: arm flapping, verbal jargoning - you name it. I was thrilled that after years in hell my son was finally at peace. But there was a price. Long term steroid use risks osteoporosis, adrenal disease, and diabetes. We were risking his health to save his brain, which was unsustainable. After two years he came off steroids and somehow he's held up. No more rocket speed development though.<br />
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The only time we see that kind of aggression now is when he outgrows his anticonvulsant dose. When he starts having forty-five minute episodes where it takes three people to restrain him before he passes out that usually means it's time for an increase. If this is just epileptiform I'd hate to see what full blow seizures look like. I don't want to find out. My son is eleven. They say epileptic males often get worse during the teen years and puberty lurks around the next corner like a dark unknown. That's why I am in a race against the clock to get CBD Oil legal in Kentucky. I'm still traumatized by those early years and that fuels my efforts. I will not settle for break-through seizures and side effects. This is my child we're talking about. Would you?<br />
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CBD Oil is a safer option and it works. Children with epilepsy disorders even more severe than my son's are becoming seizure free and leaving anticonvulsants behind. And the parents marvel in awe how it has no side effects, because that's unheard of with anticonvulsants. My son had to come off his first anticonvulsant because it raised his liver enzymes and made him overweight. The medication he takes now carries kidney stones as a risk. He's minimally verbal. Now how is he supposed to tell us if he gets kidney stones? Enough is enough. Just give us the damn oil already! <br />
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Suzanne De Gregorio is editor of CBD Oil for Autism and Epilepsy. She lives in Louisville.<br />
<br />Parents for Medical Cannabis - Kentuckyhttp://www.blogger.com/profile/13533589464076417553noreply@blogger.com15